Cohen M Z, Ley C, Tarzian A J
Health Science Center, School of Nursing, University of Texas, M. D. Anderson Cancer Center, USA.
West J Nurs Res. 2001 Oct;23(6):592-609. doi: 10.1177/019394590102300605.
This phenomenological study explored the perceptions of 20 patients who had undergone an autologous bone marrow transplantation (ABMT). Transcripts from interviews were analyzed for themes. Three themes emerged related to the experience of isolation during and after ABMT: physical isolation (protecting self and others), emotional isolation (protecting self and others), and physical and emotional isolation (supporting self and others). During physical isolation, participants were protected from infection and tried to protect family and friends from emotional burden. However, physical isolation often led to emotional isolation, which the physical presence of others ameliorated, particularly when an emotional presence was coexistent. Emotional presence was a main source of social support. Participants felt family and friends needed more guidance on ways to provide effective support. An important implication for health care professionals is that emotional support in the form of positive presencing should accompany providing information to both patients and family members.
这项现象学研究探讨了20名接受过自体骨髓移植(ABMT)患者的认知。对访谈记录进行了主题分析。出现了与ABMT期间及之后的隔离体验相关的三个主题:身体隔离(保护自己和他人)、情感隔离(保护自己和他人)以及身体和情感隔离(支持自己和他人)。在身体隔离期间,参与者免受感染,并试图保护家人和朋友免受情感负担。然而,身体隔离往往导致情感隔离,而他人的实际在场可缓解这种情况,尤其是当情感在场同时存在时。情感在场是社会支持的主要来源。参与者认为家人和朋友在提供有效支持的方式上需要更多指导。对医护人员的一个重要启示是,在向患者及其家属提供信息的同时,应以积极在场的形式提供情感支持。