Canobbio M M
School of Nursing, University of California Los Angeles, 90095, USA.
J Pediatr Nurs. 2001 Oct;16(5):363-70. doi: 10.1053/jpdn.2001.26570.
The number of children with congenital heart disease surviving beyond adolescence is rapidly increasing. Consequently, pediatric health providers not only have to address medical issues associated with the cardiac condition but must begin to develop programs that assist adolescents and their families in dealing with special health care needs for the young patient to successfully move into the adult world. Transitional health-related issues facing the adolescent with congenital heart disease including medical follow-up, insurability, employability, sexuality, and reproduction are described. Discussion about advising and counseling both patient and parents is included.
患有先天性心脏病并存活至青春期后的儿童数量正在迅速增加。因此,儿科医疗服务提供者不仅要解决与心脏疾病相关的医疗问题,还必须开始制定项目,帮助青少年及其家庭应对年轻患者的特殊医疗保健需求,以便他们能够成功步入成人世界。本文描述了患有先天性心脏病的青少年所面临的与健康过渡相关的问题,包括医疗随访、保险可及性、就业能力、性和生殖等方面。文中还包含了关于为患者及其父母提供建议和咨询的讨论。