Rapp S R, Cottrell C A, Leary M R
Department of Psychiatry, Wake Forest University, Medical Center Boulevard, Winston-Salem, NC 27157, USA.
Br J Dermatol. 2001 Oct;145(4):610-6. doi: 10.1046/j.1365-2133.2001.04444.x.
Individuals with psoriasis often report significant psychological distress, physical disability, social strain and reduced quality of life. Little is known about how they cope with the illness.
The primary aim of this study is to determine whether patients' efforts to cope with psoriasis are associated with better or worse health-related quality of life (HRQL).
Focus groups identified seven commonly used coping strategies that were subsequently measured, along with HRQL and other variables, in a survey of 318 individuals with psoriasis.
Results revealed: (i) that psoriasis is associated with decrements in all quality of life domains that were assessed, and (ii) that commonly used coping strategies such as telling others about psoriasis, covering the lesions and avoiding people were associated with greater decrements in HRQL after controlling for covariates; however, telling others that psoriasis is not contagious was associated with smaller HRQL decreases.
How patients cope with the social aspects of psoriasis is associated with their quality of life.
银屑病患者常报告有明显的心理困扰、身体残疾、社会压力及生活质量下降。对于他们如何应对该疾病知之甚少。
本研究的主要目的是确定患者应对银屑病的努力是否与健康相关生活质量（HRQL）的改善或恶化有关。
焦点小组确定了七种常用的应对策略，随后在对318名银屑病患者的调查中对这些策略以及HRQL和其他变量进行了测量。
结果显示：（i）银屑病与所评估的所有生活质量领域的下降有关；（ii）在控制协变量后，诸如向他人讲述银屑病、遮盖皮损和避开他人等常用应对策略与HRQL的更大下降有关；然而，告知他人银屑病不具有传染性与HRQL的较小下降有关。
患者应对银屑病社会层面的方式与其生活质量相关。
