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银屑病患者的应对方式与生活质量

Coping and quality of life in patients with psoriasis.

作者信息

Wahl A, Hanestad B R, Wiklund I, Moum T

机构信息

Department of Public Health and Primary Health Care, University of Bergen, Norway.

出版信息

Qual Life Res. 1999 Aug;8(5):427-33. doi: 10.1023/a:1008944108101.

Abstract

The aim of the present study was to investigate the relationship between coping dimensions and overall quality of life, disability and health status in patients' with psoriasis. Psoriasis is one of several chronic diseases which requires self-management in order to ensure an enhanced quality of life. The sample comprised 334 patients who were treated consecutively at three dermatology departments in eastern Norway. A total number of 273 patients completed the questionnaire, yielding a response rate of 82% (20% in-patients and 80% out-patients). The following questionnaires were used: The Jalowiec Coping Scale, the Psoriasis Disability Index, the Quality of Life Scale, and the SF-36. Results showed that patients who used combined emotive coping strategies reported more disability, poorer mental health and worse overall quality of life. Furthermore, patients who more frequently used normalising/optimistic coping reported higher levels of mental health. However, the variance explained by coping effort was low to moderate. Coping explained the variance in mental health and overall quality of life to a greater extent than that in physical health. Knowledge about the relationships between coping and quality of life dimensions is important with regard to the establishment and implementation of appropriate psychosocial interventions for patients with psoriasis.

摘要

本研究的目的是调查应对方式维度与银屑病患者的总体生活质量、残疾状况及健康状况之间的关系。银屑病是几种需要自我管理以确保提高生活质量的慢性疾病之一。样本包括在挪威东部三个皮肤科连续接受治疗的334名患者。共有273名患者完成了问卷调查,回复率为82%(20%为住院患者,80%为门诊患者)。使用了以下问卷:贾洛维茨应对量表、银屑病残疾指数、生活质量量表和SF-36。结果显示,采用综合情感应对策略的患者报告有更多的残疾、更差的心理健康状况和更糟的总体生活质量。此外,更频繁使用正常化/乐观应对方式的患者心理健康水平更高。然而,应对努力所解释的方差为低到中度。应对方式对心理健康和总体生活质量方差的解释程度大于对身体健康方差的解释程度。了解应对方式与生活质量维度之间的关系对于为银屑病患者建立和实施适当的心理社会干预措施很重要。

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