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脊髓损伤的母亲:对婚姻、家庭及子女适应情况的影响。

Mothers with spinal cord injuries: impact on marital, family, and children's adjustment.

作者信息

Alexander Craig J, Hwang Karen, Sipski Marca L

机构信息

The Miami Project to Cure Paralysis, Department of Neurological Surgery, University of Miami School of Medicine, Miami, FL, USA.

出版信息

Arch Phys Med Rehabil. 2002 Jan;83(1):24-30. doi: 10.1053/apmr.2002.27381.

Abstract

OBJECTIVE

To evaluate how mothers with spinal cord injury (SCI) adjust to parenting, their marriages, and their families, and how their children adjust to their mothers' disability.

DESIGN

Randomized control study of mothers with SCI and their children, matched to able-bodied mothers and their children on key demographic variables.

SETTING

Subjects were selected from 7 regional Spinal Cord Injury Model Systems from across the United States.

PARTICIPANTS

A total of 310 volunteers (experimental: 88 mothers with SCI, 46 partners, 31 children; matched controls: 84 able-bodied mothers, 33 partners, 28 children).

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Children's adjustment, gender role identity; self-esteem; children's attitude toward mother and father; dyadic and family adjustment; parenting stress; and satisfaction.

RESULTS

No significant differences were found between mothers with SCI and able-bodied mothers. Moreover, there were no significant differences between children raised in families with mothers with SCI and children raised in families with able-bodied mothers. Also, no significant differences were found in dyadic or family functioning with mothers with SCI or able-bodied mothers.

CONCLUSIONS

SCI in mothers does not appear to affect their children adversely in terms of individual adjustment, attitudes toward their parents, self-esteem, gender roles, and family functioning. Our results may challenge health care providers, social policy-makers, and the general public to end negative stereotyping of children, couples, and families with a disabled mother and wife.

摘要

目的

评估脊髓损伤(SCI)母亲如何适应为人父母、婚姻及家庭生活,以及她们的孩子如何适应母亲的残疾状况。

设计

对脊髓损伤母亲及其子女进行随机对照研究,并在关键人口统计学变量上与健全母亲及其子女进行匹配。

地点

研究对象选自美国7个地区性脊髓损伤模型系统。

参与者

共有310名志愿者(实验组:88名脊髓损伤母亲、46名伴侣、31名子女;匹配对照组:84名健全母亲、33名伴侣、28名子女)。

干预措施

不适用。

主要观察指标

儿童适应情况、性别角色认同、自尊、儿童对父母的态度、二元关系及家庭适应情况、育儿压力和满意度。

结果

脊髓损伤母亲与健全母亲之间未发现显著差异。此外,在脊髓损伤母亲家庭中成长的孩子与在健全母亲家庭中成长的孩子之间也没有显著差异。而且,在与脊髓损伤母亲或健全母亲的二元关系或家庭功能方面也未发现显著差异。

结论

母亲患脊髓损伤似乎在个体适应、对父母的态度、自尊、性别角色和家庭功能方面不会对其子女产生不利影响。我们的研究结果可能会促使医疗保健提供者、社会政策制定者和公众消除对残疾母亲和妻子的子女、夫妻及家庭的负面刻板印象。

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