Pereira J L, Koski S, Hanson J, Bruera E D, Mackey J R
Division of Palliative Care, Department of Oncology, University of Alberta, Palliative Care Program, Grey Nuns Community Hospital & Health Centre, Edmonton, Canada.
Clin Breast Cancer. 2000 Jul;1(2):148-53; discussion 154-5. doi: 10.3816/CBC.2000.n.013.
An increasing number of breast cancer patients are accessing the Internet for medical information. A survey was administered to breast cancer patients and their families attending follow-up outpatient clinics in a comprehensive cancer care center to explore their frequency of Internet use, their motivation for online activity, the type of information they sought, and the perceived impact of the information they found on the Internet on their medical care. The survey was conducted over a 4-month period. A total of 107 surveys were returned. Seventy-nine of these (74%) were from patients while 28 (26%) were from family members and friends. Thirty-four of the patient responses (43%) indicated that the patient had used the Internet to look for cancer-related information. Patients who had used the Internet to access cancer-related information were significantly younger (P = 0.007), better educated (P = 0.027), and less satisfied with the amount of treatment-related information given by caregivers than those patients who had not used the Internet to access cancer-related information (P = 0.032). The majority of patient Internet users desired more information on their cancer and its treatment (91%), looked up information that was presented to them by their clinicians (66%), researched other treatment options (63%), and obtained more information on "alternative treatments" (63%). Patient Internet users generally found the cancer-related information on the Internet to be useful, and the majority discussed Internet-derived information with their health care providers and perceived that clinicians listened to such information. However, 53% were undecided about the trustworthiness of the medical information obtained via the Internet. Internet nonusers commonly lacked Internet access (53%) or were unfamiliar with the Internet (33%), but few (13%) distrusted Internet-derived information. This exploratory study underscores the need for more research in this area, specifically with the aims of identifying and verifying factors that lead patients to use the Internet and the impact of their online activities on their medical care.
越来越多的乳腺癌患者通过互联网获取医疗信息。在一家综合癌症护理中心，对前来随访门诊的乳腺癌患者及其家属进行了一项调查，以探究他们使用互联网的频率、上网活动的动机、他们寻求的信息类型，以及他们认为在互联网上找到的信息对其医疗护理的影响。该调查为期4个月。共收回107份调查问卷。其中79份（74%）来自患者，28份（26%）来自家属和朋友。34份患者回复（43%）表明患者曾使用互联网查找与癌症相关的信息。与未使用互联网查找癌症相关信息的患者相比，使用互联网查找癌症相关信息的患者明显更年轻（P = 0.007）、受教育程度更高（P = 0.027），并且对护理人员提供的与治疗相关信息的满意度更低（P = 0.032）。大多数使用互联网的患者希望获得更多关于其癌症及其治疗的信息（91%），查找临床医生提供给他们的信息（66%），研究其他治疗方案（63%），并获取更多关于“替代疗法”的信息（63%）。使用互联网的患者普遍认为互联网上与癌症相关的信息有用，大多数患者会与医疗服务提供者讨论从互联网上获取的信息，并认为临床医生会听取这些信息。然而，53%的患者对通过互联网获取的医疗信息的可信度不确定。不使用互联网的患者通常缺乏互联网接入（53%）或不熟悉互联网（33%），但很少有人（13%）不信任从互联网上获取的信息。这项探索性研究强调了在该领域进行更多研究的必要性，特别是旨在识别和验证导致患者使用互联网的因素及其上网活动对其医疗护理产生的影响。
