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儿童生活质量量表4.0通用核心量表:敏感性、反应性及对临床决策的影响

The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making.

作者信息

Varni James W, Seid Michael, Knight Tara Smith, Uzark Karen, Szer Ilona S

机构信息

Center for Child Health Outcomes, Children's Hospital and Health Center, Department of Psychiatry, University of California, San Diego, School of Medicine, USA.

出版信息

J Behav Med. 2002 Apr;25(2):175-93. doi: 10.1023/a:1014836921812.

DOI:10.1023/a:1014836921812
PMID:11977437
Abstract

The PedsQL 4.0 (Pediatric Quality of Life Inventory) Generic Core Scales are child self-report and parent proxy-report scales developed to measure health-related quality of life (HRQOL) in children and adolescents ages 2-18. The PedsQL 4.0 Generic Core Scales consist of 23 items applicable for healthy school and community populations and pediatric populations with acute and chronic health conditions. The 4 PedsQL 4.0 Generic Core Scales (Physical, Emotional, Social, School) were administered to 209 children and 269 parents (289 subjects accrued overall) recruited from pediatric cardiology, orthopedics, and rheumatology clinics. Sensitivity, responsiveness, and the impact on clinical decision-making were determined. The PedsQL was differentially sensitive to increasing degrees of cardiac disease severity in the cardiology clinic setting and responsive to clinical change over time in the pediatric orthopedics clinic setting. In the pediatric rheumatology clinic setting, the PedsQL demonstrated an impact on clinical decision-making, resulting in subsequent increases in HRQOL.

摘要

儿童生活质量量表4.0版(儿科生活质量量表)通用核心量表是儿童自评和家长代理报告量表,旨在测量2至18岁儿童和青少年与健康相关的生活质量(HRQOL)。儿童生活质量量表4.0版通用核心量表由23个项目组成,适用于健康的学校和社区人群以及患有急慢性健康状况的儿科人群。对从儿科心脏病学、骨科和风湿病诊所招募的209名儿童和269名家长(共纳入289名受试者)施测了儿童生活质量量表4.0版的4个通用核心量表(身体、情感、社会、学校)。确定了其敏感性、反应性以及对临床决策的影响。在心脏病学诊所环境中,儿童生活质量量表对心脏病严重程度的增加具有不同程度的敏感性,在儿科骨科诊所环境中,对随时间的临床变化具有反应性。在儿科风湿病诊所环境中,儿童生活质量量表对临床决策产生了影响,从而使健康相关生活质量随后得到提高。

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Parents' Perceptions of Primary Care: measuring parents' experiences of pediatric primary care quality.父母对初级保健的认知:衡量父母对儿科初级保健质量的体验
Pediatrics. 2001 Aug;108(2):264-70. doi: 10.1542/peds.108.2.264.
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PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.
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