Goodwin Danielle M, Higginson Irene J, Myers Kathy, Douglas Hannah-Rose, Normand Charles E
Department of Palliative Care and Policy, King's College London, Weston Education Centre, Cutcombe Road, Denmark Hill, London SE5 9RJ, UK.
Support Care Cancer. 2002 Oct;10(7):556-62. doi: 10.1007/s00520-002-0380-1. Epub 2002 Aug 21.
The goals of the work described in this paper were to describe palliative day care from the patient's perspective. Five palliative day care centres in the UK are described. The study subjects were new referrals to the five palliative day care centres, which provided facilities for medical and nursing assessment and also for social and therapeutic activities. This reflects the range of palliative day care services provided in the London region. Three interviews were carried out with each patient over a 3-month period. The descriptive data were examined for content, and the themes were analysed for the frequency of responses within and between interviews. The responses were also examined within three different models of day care (defined by the services). In all, 120 day care patients were recruited from the five centres. Patients attending for day care were mainly white, over 65 years old, retired, and with a cancer diagnosis. These were a representative sample of day care patients in the London region. Patients attended day care to 'meet people' and 'get them out of home' and found the environment 'nice and friendly'. The relationships with the staff and volunteers were also important, and they enjoyed the various activities. At each interview the most important theme identified was 'meeting people'. For this to be supported it would mean encouraging the activities within day care that provide patients with an environment in which they can meet people. This will mean different things to different people, as highlighted in the different philosophies obtained at individual centres.
本文所述工作的目标是从患者的角度描述姑息日间护理。文中介绍了英国的五家姑息日间护理中心。研究对象是这五家姑息日间护理中心的新转诊患者,这些中心提供医疗和护理评估设施以及社会和治疗活动设施。这反映了伦敦地区提供的姑息日间护理服务的范围。在3个月的时间里,对每位患者进行了三次访谈。对描述性数据进行了内容审查,并对主题进行了分析,以了解访谈内部和访谈之间的回答频率。还在三种不同的日间护理模式(根据服务定义)下对回答进行了审查。总共从这五个中心招募了120名日间护理患者。参加日间护理的患者主要是白人,年龄超过65岁,已退休,且被诊断患有癌症。这些是伦敦地区日间护理患者的代表性样本。患者参加日间护理是为了“与人见面”和“走出家门”,并觉得那里的环境“美好且友好”。与工作人员和志愿者的关系也很重要,他们喜欢各种活动。在每次访谈中,确定的最重要主题都是“与人见面”。要支持这一点,就意味着鼓励日间护理中的活动,为患者提供一个他们能够与人见面的环境。这对不同的人意味着不同的事情,正如各个中心不同的理念所强调的那样。