Hedov G, Annerén G, Wikblad K
Unit of Paediatrics, Department of Woman and Child Health, Uppsala University, Uppsala, Sweden.
Scand J Caring Sci. 2002 Dec;16(4):424-30. doi: 10.1046/j.1471-6712.2002.00109.x.
Becoming parents of a child with Down's syndrome (DS) challenges the adjustment ability in parenthood. Individuals with higher sense of coherence (SOC) are supposed to manage stressors better than those with lower SOC. The aims of this study were to investigate parental self-perceived stress, SOC, frequency of gainful employment and amount of time spent on child care in Swedish DS parents (165 parents; 86 mothers, 79 fathers) and to compare those with control parents of healthy children (169 parents; 87 mothers, 82 fathers). The mean age of the children was 4.7 years. Parents responded to questionnaires separately including Hymovich's Parent Perception Inventory as stress measurement and Antonovsky's short version of the Orientation to Life. No differences concerning total employment rate were observed, but the DS mothers were more often employed part-time than control mothers. The DS parents did not spend more time on child care than the control parents and they did not differ in mean SOC score, but the DS parents perceived greater stress. The differences in stress, particularly between the DS and control mothers, were related to time-demanding areas. Parents with high SOC scores experienced significantly less self-perceived stress.
成为一名唐氏综合征（DS）患儿的父母对为人父母的适应能力构成了挑战。具有较高连贯感（SOC）的个体应该比SOC较低的个体更好地应对压力源。本研究的目的是调查瑞典DS患儿父母（165名父母；86名母亲，79名父亲）的父母自我感知压力、SOC、有偿就业频率和照顾孩子所花费的时间，并将他们与健康儿童的对照父母（169名父母；87名母亲，82名父亲）进行比较。孩子的平均年龄为4.7岁。父母分别回答问卷，包括作为压力测量的希莫维奇父母感知量表和安东诺夫斯基生活取向简短版。在总就业率方面未观察到差异，但DS患儿的母亲比对照母亲更常从事兼职工作。DS患儿的父母在照顾孩子上花费的时间并不比对照父母多，他们的平均SOC得分也没有差异，但DS患儿的父母感知到更大的压力。压力方面的差异，特别是DS患儿父母与对照母亲之间的差异，与时间要求高的领域有关。SOC得分高的父母自我感知压力明显较小。
