School of Life Sciences, University of Skövde, Box 408, 541 28, Skövde, Sweden.
BMC Pediatr. 2012 Jun 21;12:79. doi: 10.1186/1471-2431-12-79.
When a child is diagnosed with childhood cancer this creates severe stress in the parents. The aim of the study was to describe the sense of coherence and its change over time in a sample of parents of children diagnosed with cancer.
The Swedish version of SOC (29 items) was used to measure the parents' (n = 29) sense of coherence. Data were collected at four time-points: Time-point 1 at the time of diagnosis; time-point 2 during the treatment; time-point 3 after the child had completed their treatment and time-point 4 when the child had been off treatment for some years or had died.
The results showed that SOC in the investigated population is not stable over time. The parents decreased in total SOC between time-points 1, 2 and 3. Mothers had significantly weaker total SOC score including the components Manageability and Meaningfulness at time-points 1 as well time-point 2 compared to the fathers. However, for the component Comprehensibility no significant differences were shown between mothers and fathers. This study indicates that mothers' and fathers' SOC scores change over time during the child's cancer trajectory. However, the pattern in these changes varies between mothers and fathers.
This study indicates that mothers and fathers may have different support needs during their child's cancer trajectory.
当孩子被诊断出患有癌症时，这会给父母带来巨大的压力。本研究的目的是描述癌症患儿父母的凝聚力感及其随时间的变化。
使用瑞典版 SOC（29 项）来衡量父母（n=29）的凝聚力感。数据在四个时间点收集：诊断时的时间点 1；治疗期间的时间点 2；孩子完成治疗后的时间点 3；以及孩子停止治疗数年或死亡后的时间点 4。
结果表明，调查人群中的 SOC 并非稳定不变。父母的总体 SOC 在时间点 1、2 和 3 之间下降。母亲在时间点 1 和 2 的可管理性和意义方面的总 SOC 评分以及父亲的评分明显较弱。然而，在可理解性方面，母亲和父亲之间没有显示出显著差异。本研究表明，母亲和父亲的 SOC 评分在孩子的癌症轨迹期间随时间发生变化。然而，这些变化的模式在母亲和父亲之间有所不同。
本研究表明，母亲和父亲在孩子的癌症轨迹中可能有不同的支持需求。
