Padeliadu S
Department of Elementary Education, Aristotle University of Thessaloniki, Greece.
J Intellect Disabil Res. 1998 Apr;42 ( Pt 2):144-53. doi: 10.1046/j.1365-2788.1998.00113.x.
The purpose of the present study was to asses the time demands placed on mothers of children with Down's syndrome, and the possible relationship between those demands and the stress which the mothers experience. The study sample consisted of 41 mothers of children with Down's syndrome living in Northern Greece and a comparison group of 41 mothers of non-disabled children. Three instruments were used for the data collection: (1) a questionnaire for biographic information; (2) a self-report form assessing the time demands placed on the mothers; and (3) an adaptation of the Clark Questionnaire on Resources and Stress (QRS) for the evaluation of the stress experienced. The results of the present study revealed increased time demands on the mothers of children with Down's syndrome in comparison to the mothers of non-disabled children in terms of recreational/educational activities and total time demands. Furthermore, the mothers of children with Down's syndrome perceived the time they spend with their children less positively than the mothers of the comparison group. In regard to the stress experienced, it appeared that mothers of children with Down's syndrome differ significantly from mothers of non-disabled children, not only on the level of the stress which they experience, but on the activities related to this stress as well.
本研究的目的是评估唐氏综合征患儿母亲的时间需求，以及这些需求与母亲所经历压力之间的可能关系。研究样本包括居住在希腊北部的41位唐氏综合征患儿的母亲，以及一个由41位非残疾儿童母亲组成的对照组。使用了三种工具来收集数据：（1）一份用于收集个人信息的问卷；（2）一份自我报告表，用于评估对母亲的时间需求；（3）一份经过改编的克拉克资源与压力问卷（QRS），用于评估所经历的压力。本研究结果显示，与非残疾儿童的母亲相比，唐氏综合征患儿的母亲在娱乐/教育活动和总时间需求方面的时间需求增加。此外，唐氏综合征患儿的母亲对与孩子相处时间的看法不如对照组的母亲积极。关于所经历的压力，唐氏综合征患儿的母亲似乎不仅在经历的压力水平上，而且在与这种压力相关的活动上，都与非残疾儿童的母亲有显著差异。
