McKeown L P, Porter-Armstrong A P, Baxter G D
Rehabilitation Sciences Research Group, University of Ulster at Jordanstown, Newtownabbey, Co. Antrim, Northem Ireland, UK.
Clin Rehabil. 2003 May;17(3):234-48. doi: 10.1191/0269215503cr618oa.
To appraise recent studies regarding the needs and experiences of caregivers of individuals with multiple sclerosis (MS).
The following computerized databases were searched: CINAHL, BIDS IBSS, ASSIA, MEDLINE, PSYCHINFO, British Nursing Index, ISI Web of Science, Zetoc, AMED (1990-April 2002). The computer-based search was supplemented by manual searches of the reference lists of all retrieved studies and review articles. Inclusion and exclusion criteria were formulated.
Twenty-four studies from across the world that met the inclusion criteria were reviewed. The majority of studies were descriptive in nature. The studies covered a variety of topics, including how carers assist people with MS, the effect of providing care on a carer's physical and psychological well-being, social life, financial situation and overall quality of life, and how carers cope with the stresses of providing care.
Providing care for a person with MS has a major impact on all areas of the caregiver's life. Perceived social support has been shown to have a beneficial impact on the caregiver. Limitations in design and variation in methodology of studies limits the generalizability of findings. There is a need for further research, in particular the development of reliable and valid disease-specific caregiver assessment instruments.
评估近期关于多发性硬化症（MS）患者照料者的需求及经历的研究。
检索了以下计算机化数据库：护理学与健康领域数据库（CINAHL）、英国教育索引数据库（BIDS IBSS）、应用社会科学索引与摘要数据库（ASSIA）、医学索引数据库（MEDLINE）、心理学文摘数据库（PSYCHINFO）、英国护理索引、科学引文索引扩展版（ISI Web of Science）、Zetoc、联合与补充医学数据库（AMED，1990年至2002年4月）。在基于计算机检索的基础上，还对手动检索所有检索到的研究及综述文章的参考文献列表进行了补充。制定了纳入和排除标准。
对来自世界各地的24项符合纳入标准的研究进行了综述。大多数研究本质上是描述性的。这些研究涵盖了多个主题，包括照料者如何协助MS患者、提供照料对照料者身心健康、社会生活、财务状况及总体生活质量的影响，以及照料者如何应对照料压力。
照料MS患者对照料者生活的各个方面都有重大影响。已表明感知到的社会支持对照料者有有益影响。研究设计的局限性和方法学的差异限制了研究结果的普遍性。需要进一步开展研究，特别是开发可靠且有效的针对特定疾病的照料者评估工具。
