Watt E, Whyte F
Marie Curie Centre, Belmont Road, Glasgow G21 3AY, UK.
Eur J Cancer Care (Engl). 2003 Jun;12(2):183-93. doi: 10.1046/j.1365-2354.2003.00376.x.
This qualitative study was designed to explore the experience of dysphagia in oesophageal cancer and how this impacts on quality of life. The aim of the study was to add to the knowledge and comprehension of this poorly understood symptom. Data was collected through in-depth interview and administration of the EORTC QLQ-C30 and EORTC QLQ-OES24 quality of life tools with six people with incurable oesophageal cancer who had dysphagia. The interviews were tape-recorded and then transcribed verbatim for each participant. Through a thematic analysis of the interview data and a descriptive analysis of the questionnaires a detailed description of the experience of dysphagia and its impact on quality of life was obtained. Five basic themes emerged from the participant's accounts and these were recognizing dysphagia, the physical experience, the emotions evoked, the impact on social life and dysphagia and treatment. In conclusion dysphagia is a troublesome symptom which affects all aspects of quality of life.
这项定性研究旨在探索食管癌患者吞咽困难的经历以及这如何影响生活质量。该研究的目的是增进对这一了解甚少的症状的认识和理解。通过对6名患有无法治愈的食管癌且有吞咽困难的患者进行深入访谈，并使用欧洲癌症研究与治疗组织生活质量核心问卷（EORTC QLQ-C30）和欧洲癌症研究与治疗组织食管癌特异性问卷（EORTC QLQ-OES24）收集数据。访谈进行了录音，然后逐字转录给每位参与者。通过对访谈数据的主题分析和问卷的描述性分析，获得了吞咽困难经历及其对生活质量影响的详细描述。从参与者的叙述中出现了五个基本主题，即认识吞咽困难、身体体验、引发的情绪、对社交生活的影响以及吞咽困难与治疗。总之，吞咽困难是一种困扰症状，会影响生活质量方方面面。
