唐氏综合征患儿的父亲与其他类型智力残疾患儿的父亲：认知、压力与参与情况
Fathers of children with Down's syndrome versus other types of intellectual disability: perceptions, stress and involvement.
作者信息
Ricci L A, Hodapp R M
机构信息
UCLA Graduate School of Education and Information Studies, Los Angeles, California 90095-1521, USA.
出版信息
J Intellect Disabil Res. 2003 May-Jun;47(Pt 4-5):273-84. doi: 10.1046/j.1365-2788.2003.00489.x.
BACKGROUND
The present study examined fathers' perceptions of, stress relating to and involvement with children with Down's syndrome (DS) (n = 30) versus those with other types of intellectual disability (ID) (n = 20).
METHODS
Fathers and mothers completed questionnaires about their children's personalities and maladaptive behaviours, their own parenting stress, and the fathers' level of involvement.
RESULTS
Both fathers and mothers rated their children with DS as having more positive personality traits and fewer maladaptive behaviours. Possibly because of these positive perceptions, fathers of children with DS also reported less child-related stress, particularly in the areas of acceptability, adaptability and demandingness. The two groups of fathers were very similarly involved in child rearing. The personality, age and maladaptive behaviours of the children related to stress levels in the fathers of children with DS, while maladaptive behaviours, gender and the fathers' education levels related to stress levels in the fathers of children with other types of ID.
CONCLUSIONS
These results highlight the importance of examining parental stress and involvement with children with different types of ID.
背景
本研究调查了唐氏综合征（DS）患儿（n = 30）与其他类型智力障碍（ID）患儿（n = 20）的父亲对孩子的看法、与之相关的压力以及参与度。
方法
父亲和母亲完成了关于孩子性格和适应不良行为、自身育儿压力以及父亲参与程度的问卷调查。
结果
父亲和母亲都认为患有唐氏综合征的孩子具有更积极的性格特征和更少的适应不良行为。可能由于这些积极的看法，患有唐氏综合征孩子的父亲也报告称与孩子相关的压力较小，尤其是在可接受性、适应性和苛求性方面。两组父亲在育儿方面的参与程度非常相似。患有唐氏综合征孩子的父亲的压力水平与孩子的性格、年龄和适应不良行为有关，而患有其他类型智力障碍孩子的父亲的压力水平与孩子的适应不良行为、性别和父亲的教育水平有关。
结论
这些结果凸显了研究不同类型智力障碍患儿家长压力和参与度的重要性。
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