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像我们这样的女性确实会生育孩子:残疾母亲体验医疗保健服务的经历

[Women like us do bear children: disabled mothers on experiencing healthcare services].

作者信息

Laerum Kristin Tafjord, Grue Lars

机构信息

Norsk institutt for forskning om oppvekst, velferd og aldring (NOVA), Oslo.

出版信息

Tidsskr Nor Laegeforen. 2003 Jun 26;123(13-14):1852-3.

PMID:12830263
Abstract

BACKGROUND

Although a number of physically disabled women bear children, little is known about how perinatal health care services are adapted to the needs of this group. In this article we address the issue from a social relational perspective on disability.

MATERIAL AND METHODS

This article is based on lengthy interviews with 21 physically disabled women who gave birth over the 1991-2000 period. The results are part of an exploratory and qualitative research project covering a broader range of topics related to disability and motherhood carried out by NOVA, a Norwegian institute for social research.

RESULTS AND INTERPRETATION

Environmental barriers, attitudes as well as limited knowledge and experience among health care professional may prevent disabled women from receiving the perinatal care they are entitled to. Despite reported limitations in these services, quite a few of our respondents told us about professionals who did provide help and treatment adapted to their special needs. Important factors were accessible environment, respectful attitude and the professionals' ability to take the required precautions without making the women feel they were a source of problems.

摘要

背景

尽管许多身体残疾的女性会生育子女,但对于围产期保健服务如何适应这一群体的需求,我们却知之甚少。在本文中,我们从社会关系视角探讨残疾问题。

材料与方法

本文基于对1991年至2000年间分娩的21名身体残疾女性进行的长期访谈。研究结果是由挪威社会研究机构NOVA开展的一个探索性定性研究项目的一部分,该项目涵盖了与残疾和母亲身份相关的更广泛主题。

结果与解读

环境障碍、态度以及医疗保健专业人员有限的知识和经验,可能会阻碍残疾女性获得她们应享有的围产期护理。尽管这些服务存在局限性,但我们的不少受访者向我们讲述了一些专业人员,他们确实提供了符合她们特殊需求的帮助和治疗。重要因素包括无障碍环境、尊重的态度以及专业人员采取必要预防措施的能力,同时又不会让女性觉得她们是问题之源。

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