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使残疾女性生育正常化:从业者面临的挑战。

Normalising birth for women with a disability: the challenges facing practitioners.

机构信息

St. John's, Donegal Rd., Ballybofey, Lifford, Co. Donegal, Republic of Ireland.

出版信息

Midwifery. 2013 Apr;29(4):294-9. doi: 10.1016/j.midw.2011.10.007. Epub 2013 Feb 1.

DOI:10.1016/j.midw.2011.10.007
PMID:23375750
Abstract

UNLABELLED

Previous research on pregnant women with a disability and their experience of maternity care demonstrated that these mothers perceived themselves to be the 'perennial outsiders' with midwives automatically categorising them as 'high risk' because of their disability. They also felt that their ability to make choices, stay in control and have continuity of care was not considered to be part of the mainstream maternity care for them because they did not fit the 'normal' category.

OBJECTIVE

this research was undertaken to explore the perceptions of two multiprofessional teams in Irish hospitals as to how maternity services to these mothers can be improved.

PARTICIPANTS

nineteen health-care professionals from midwifery, social work and public health nursing were recruited.

SETTING

two from two major maternity hospitals, one in the North and one in the South of Ireland. were featured.

DESIGN

the method chosen was a qualitative approach, using focus group interviews in which case studies depicting a range and breadth of women's birthing experiences were presented and discussed. Newell and Burnard's (2006) six stage approach to thematic content analysis was used.

FINDINGS

the professionals found the disabled women's stories believable, upsetting and challenging.

KEY CONCLUSIONS

Staff acknowledged their 'lack of competence, knowledge and skill' regarding disability and felt that, on reflection, their failure to consult and collaborate with disabled women contributed to their failing to provide individualised woman centred care to women with a disability. IMPLICATIONS OF PRACTICe: A series of recommendations for improved practice was agreed.

摘要

未加标签

先前针对残疾孕妇及其孕产护理体验的研究表明,这些母亲认为自己是“永久的局外人”,因为残疾,助产士会自动将她们归类为“高风险”。她们还觉得自己的决策能力、控制能力和护理连续性没有被视为主流孕产护理的一部分,因为她们不符合“正常”类别。

目的

本研究旨在探讨爱尔兰两家医院的多专业团队对如何改善这些母亲的孕产护理的看法。

参与者

从助产、社会工作和公共卫生护理领域招募了 19 名卫生保健专业人员。

地点

两家主要妇产医院,一家在爱尔兰北部,一家在南部。

设计

选择的方法是定性方法,使用焦点小组访谈,其中呈现和讨论了一系列不同女性分娩经历的案例研究。使用了 Newell 和 Burnard(2006)的主题内容分析六阶段方法。

发现

专业人员认为残疾妇女的故事可信、令人不安和具有挑战性。

主要结论

工作人员承认他们在残疾方面“缺乏能力、知识和技能”,并认为,反思之后,他们未能咨询和与残疾妇女合作,导致他们未能为残疾妇女提供个性化的以妇女为中心的护理。

实践意义

达成了一系列改进实践的建议。

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