Azoulay Elie, Pochard Frédéric, Chevret Sylvie, Arich Charles, Brivet François, Brun Frédéric, Charles Pierre-Emmanuel, Desmettre Thibaut, Dubois Didier, Galliot Richard, Garrouste-Orgeas Maite, Goldgran-Toledano Dany, Herbecq Patrick, Joly Luc-Marie, Jourdain Mercé, Kaidomar Michel, Lepape Alain, Letellier Nicolas, Marie Olivier, Page Bernard, Parrot Antoine, Rodie-Talbere Pierre-Andre, Sermet Alain, Tenaillon Alain, Thuong Marie, Tulasne Patrick, Le Gall Jean-Roger, Schlemmer Benot
Service de Réanimation Médicale, Hôpital Saint-Louis, 1 Avenue Claude Vellefaux, 75010 Paris, France.
Intensive Care Med. 2003 Sep;29(9):1498-504. doi: 10.1007/s00134-003-1904-y. Epub 2003 Jul 10.
Allowing family members to participate in the care of patients in intensive care units (ICUs) may improve the quality of their experience. No previous study has investigated opinions about family participation in ICUs.
Prospective multicenter survey in 78 ICUs (1,184 beds) in France involving 2,754 ICU caregivers and 544 family members of 357 consecutive patients. We determined opinions and experience about family participation in care; comprehension (of diagnosis, prognosis, and treatment) and satisfaction (Critical Care Family Needs Inventory) scores to assess the effectiveness of information to families and the Hospital Anxiety and Depression score for family members.
Among caregivers 88.2% felt that participation in care should be offered to families. Only 33.4% of family members wanted to participate in care. Independent predictors of this desire fell into three groups: patient-related (SAPS II at ICU admission, OR 0.984); ICU stay length, OR 1.021), family-related (family member age, OR 0.97/year); family not of European descent, OR 0.294); previous ICU experience in the family, OR 1.59), and those related to emotional burden and effectiveness of information provided to family members (symptoms of depression in family members, OR 1.58); more time wanted for information, OR 1.06).
Most ICU caregivers are willing to invite family members to participate in patient care, but most family members would decline.
允许家庭成员参与重症监护病房（ICU）患者的护理可能会提高他们的体验质量。此前尚无研究调查过关于家庭成员参与ICU护理的看法。
在法国的78个ICU（共1184张床位）进行前瞻性多中心调查，涉及2754名ICU护理人员以及357例连续收治患者的544名家庭成员。我们确定了关于家庭成员参与护理的看法和体验；评估向家属提供信息有效性的理解（对诊断、预后和治疗的理解）和满意度（重症监护病房家属需求量表）得分，以及家庭成员的医院焦虑抑郁量表得分。
在护理人员中，88.2%认为应让家属参与护理。只有33.4%的家庭成员希望参与护理。这种意愿的独立预测因素分为三组：与患者相关的（入住ICU时的简化急性生理学评分II，比值比0.984）；ICU住院时长，比值比1.021），与家庭相关的（家庭成员年龄，比值比0.97/年）；非欧洲裔家庭，比值比0.294）；家庭之前有过ICU经历，比值比1.59），以及与情感负担和向家庭成员提供信息的有效性相关的因素（家庭成员的抑郁症状，比值比1.58）；希望获得更多信息时间，比值比1.06）。
大多数ICU护理人员愿意邀请家庭成员参与患者护理，但大多数家庭成员会拒绝。
