Christian Becky
School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Annu Rev Nurs Res. 2003;21:151-72.
This chapter reviews the published research from 1980 through 2001 on the psychosocial adjustment of children and adolescents with cystic fibrosis. The inclusion criteria were that research was conducted by nurses and researchers from related disciplines that focused on the psychosocial adjustment of children (6 to 12 years) and/or adolescents (13 to 22 years) with cystic fibrosis (CF). Three computerized databases were used for retrieval: Cumulative Index of Nursing and Allied Health Literature (CINAHL), Medline, and PsycINFO. Of the 74 citations published from 1980 through 2001, only 20 studies met the inclusion criteria, including 7 nursing research studies and 13 studies published by non-nurses in related disciplines. Key findings from this review were that the focus of nursing research was on the social consequences of chronic illness, while the non-nursing research focused on self-concept, self-worth, and psychiatric symptoms of anxiety, worry, and behavior problems. Only two programs of research were identified. Developmental science was used as a guiding framework for the critique of the research. Recommendations for future research include developmentally sensitive longitudinal studies to track developmental change and stability over time, as well as research that captures individual developmental differences.
本章回顾了1980年至2001年期间发表的关于囊性纤维化儿童和青少年心理社会适应的研究。纳入标准为研究由护士及相关学科的研究人员开展，且聚焦于6至12岁儿童和/或13至22岁青少年囊性纤维化（CF）患者的心理社会适应。使用了三个计算机化数据库进行检索：护理学与联合健康文献累积索引（CINAHL）、医学索引数据库（Medline）和心理学文摘数据库（PsycINFO）。在1980年至2001年发表的74篇文献中，只有20项研究符合纳入标准，其中包括7项护理研究以及13项相关学科非护士人员发表的研究。本次综述的主要发现为，护理研究的重点是慢性病的社会影响，而非护理研究则集中在自我概念、自我价值以及焦虑、担忧和行为问题等精神症状方面。仅确定了两个研究项目。发展科学被用作研究评论的指导框架。对未来研究的建议包括开展对发展敏感的纵向研究，以追踪随时间推移的发展变化和稳定性，以及开展能够捕捉个体发展差异的研究。
