Johnston Cindy, Hessl David, Blasey Chistine, Eliez Stephan, Erba Heather, Dyer-Friedman Jennifer, Glaser Bronwyn, Reiss Allan L
Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA 94305-5719, USA.
J Dev Behav Pediatr. 2003 Aug;24(4):267-75. doi: 10.1097/00004703-200308000-00008.
Whereas previous research has demonstrated elevated levels of parenting stress in parents of children with general developmental disability, there has been little investigation of stress in parents of children specifically affected by the common neurogenetic disorder fragile X syndrome (FraX). This study elucidates stress profiles in mothers of children with FraX and delineates the contribution of child characteristics, home environment, and maternal psychological functioning to specific dimensions of parental stress. Data on child, home, and family characteristics were collected from 75 families with a child affected by FraX. These characteristics were entered into multiple regression analyses with a domain or subscale of the Parenting Stress Index as the dependent variable in each analysis. The results demonstrated that aspects of child behavior, family cohesion, household income, and maternal psychopathology differentially correlate with specific dimensions of parenting stress. Determining the relative contribution of factors associated with stress will assist in the development of interventions to improve parental well-being in mothers of children with FraX.
尽管先前的研究表明，患有一般发育障碍的儿童的父母育儿压力水平较高，但对于受常见神经遗传疾病脆性X综合征（FraX）具体影响的儿童的父母的压力，几乎没有进行过调查。本研究阐明了患有FraX的儿童的母亲的压力状况，并描述了儿童特征、家庭环境和母亲心理功能对父母压力特定维度的影响。从75个有受FraX影响儿童的家庭收集了有关儿童、家庭和家庭特征的数据。在每次分析中，将这些特征作为自变量纳入以《育儿压力指数》的一个领域或子量表为因变量的多元回归分析。结果表明，儿童行为、家庭凝聚力、家庭收入和母亲精神病理学方面与育儿压力的特定维度存在差异相关性。确定与压力相关的因素的相对影响将有助于制定干预措施，以改善患有FraX的儿童的母亲的幸福感。
