Bendz Mona
University College of Health Sciences, Jönköping, Sweden.
Scand J Caring Sci. 2003 Sep;17(3):215-22. doi: 10.1046/j.1471-6712.2003.00217.x.
This phenomenographic study aimed to highlight divergent ways in which a group of people hit by a stroke and their health care professionals understand the implications of having a stroke. Data consisted of interviews with 15 patients (aged less than 65 years) who have had a stroke and transcripts from the health care professionals' recording during the first year of rehabilitation. Three basic conceptions related to the stroke were shared, but the interpretation of these conceptions and the goals of the rehabilitative activities differed. While the patients' experience of the loss of control, fatigue and a fear of a relapse influenced their rehabilitation process, the health care professionals ignored these aspects in their recording. Their focus was more on reduced functions and training. Successful rehabilitation must be based on the conceptions of those who have had a stroke of what it involves. Goals should be explicitly expressed and discussed and be experienced as relevant by the person who has had a stroke as well as by the health care professionals. Measures to assess all the implications of strokes must be developed. The multi-professional perspectives represented amongst the team of health care professionals must be adopted and implemented.
这项现象学研究旨在突出一组中风患者及其医护人员理解中风影响的不同方式。数据包括对15名(年龄小于65岁)中风患者的访谈以及医护人员在康复第一年的记录文本。关于中风有三个基本概念是共通的,但对这些概念的解读以及康复活动的目标有所不同。虽然患者对失去控制、疲劳和复发恐惧的体验影响了他们的康复过程,但医护人员在记录中忽略了这些方面。他们更关注功能减退和训练。成功的康复必须基于中风患者对其所涉及内容的概念。目标应该明确表达和讨论,并且中风患者以及医护人员都应认为这些目标是相关的。必须制定评估中风所有影响的措施。必须采用并实施医护人员团队中所代表的多专业视角。