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探索澳大利亚青年卒中患者的未满足需求:技术能否满足他们的需求?一项定性研究。

Exploring the Unmet Needs of Young Adults with Stroke in Australia: Can Technology Help Meet Their Needs? A Qualitative Study.

机构信息

School of Health Sciences, University of Tasmania, Launceston, TAS 7250, Australia.

Tasmanian School of Medicine, University of Tasmania, Burnie, TAS 7320, Australia.

出版信息

Int J Environ Res Public Health. 2023 Jul 26;20(15):6450. doi: 10.3390/ijerph20156450.

Abstract

The post-stroke needs of young adults with stroke are not being met, as most resources are tailored to older people with stroke. This includes technology-based applications, which are being used more frequently in stroke rehabilitation. There is limited data on technology usage to support the unique needs of young adults with stroke in Australia. This study aimed to explore the unmet needs of young adults aged 18-30 years with stroke and ascertain how technology can help meet those needs to improve quality of life and participation. Sixteen in-depth semi-structured interviews were conducted with young adults with stroke ( = 10), healthcare professionals ( = 3) and caregivers of young adults with stroke ( = 3). The interviews were transcribed verbatim and analyzed inductively. Five themes were generated: 'Support for recovery', 'Availability of specific resources', 'Continuity of care', 'Adjustment' and 'Knowledge'. This study revealed the unique needs of young adults under 30 years with stroke who requested more targeted post-stroke support, age-specific resources and improved awareness on young stroke, with technology playing a pivotal role in all these interventions. We suggest co-designing technology-based solutions with young people after stroke to maximize their effectiveness in improving quality of life and participation in this unique cohort.

摘要

脑卒中后,年轻患者的需求未得到满足,因为大多数资源都是为脑卒中老年患者量身定制的。这包括基于技术的应用,这些应用在脑卒中康复中越来越多地被使用。在澳大利亚,关于技术使用以支持年轻脑卒中患者独特需求的数据有限。本研究旨在探讨脑卒中后 18-30 岁年轻患者的未满足需求,并确定技术如何帮助满足这些需求,以提高生活质量和参与度。对 16 名脑卒中年轻患者(=10)、医疗保健专业人员(=3)和年轻脑卒中患者的照顾者(=3)进行了 16 次深入的半结构式访谈。采访记录逐字转录并进行归纳分析。产生了五个主题:“康复支持”、“特定资源的可用性”、“连续性护理”、“调整”和“知识”。本研究揭示了 30 岁以下年轻脑卒中患者的独特需求,他们需要更有针对性的脑卒中后支持、特定于年龄的资源以及提高对年轻脑卒中的认识,而技术在所有这些干预措施中都发挥了关键作用。我们建议与脑卒中后的年轻人共同设计基于技术的解决方案,以最大限度地提高这些解决方案在改善生活质量和参与度方面的效果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e000/10418600/ab903193fb0e/ijerph-20-06450-g001.jpg

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