Madden Ros, Choi Ching, Sykes Catherine
Australian Institute of Health and Welfare, G.P.O. Box 570, Canberra, A.C.T. 2601, Australia.
Disabil Rehabil. 2003;25(11-12):676-82. doi: 10.1080/0963828031000137171.
A country's data may influence and inform its policy and services, if suitably designed. This paper describes how two related and interacting activities--work on disability concepts and classification as well as the preparation of national data dictionaries--have been carried out in Australia, with this purpose.
Three key ingredients were combined. A broadly based advisory group was established to ensure the use of disability concepts that are meaningful not only to policy makers but also to the Australian community. This group advised on two 'twin' activities: participation in the revision of the key international classification for disability, and specification of data elements for a national data dictionary according to international standards.
National data elements were developed, based on the Beta-2 draft ICIDH-2, and accepted for use in Australian national data dictionaries on a trial basis.
The purpose and process have been accepted as valuable, and there is interested anticipation of new Australian standard data elements based on the ICF.
如果设计得当,一个国家的数据可以影响并为其政策和服务提供信息。本文描述了澳大利亚如何开展两项相关且相互作用的活动——残疾概念与分类工作以及国家数据字典的编制——以此为目的。
结合了三个关键要素。成立了一个基础广泛的咨询小组,以确保所使用的残疾概念不仅对政策制定者有意义,而且对澳大利亚社区也有意义。该小组就两项“孪生”活动提供建议:参与残疾关键国际分类的修订,以及根据国际标准为国家数据字典确定数据元素。
基于《国际功能、残疾和健康分类(第二版)》预发行第二版草案制定了国家数据元素,并被接受在澳大利亚国家数据字典中试行。
该目的和过程已被认为具有价值,并且人们对基于《国际功能、残疾和健康分类》的新澳大利亚标准数据元素满怀期待。