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发育障碍青年兄弟姐妹的干预和支持:系统评价。

Intervention and support for siblings of youth with developmental disabilities: a systematic review.

机构信息

Psychology Department, Stony Brook University, Stony Brook, NY, 11794-2500, USA,

出版信息

Clin Child Fam Psychol Rev. 2015 Mar;18(1):1-23. doi: 10.1007/s10567-014-0175-1.

DOI:10.1007/s10567-014-0175-1
PMID:25315924
Abstract

Both the population of siblings of youth with developmental disabilities (DDs) and the popularity of clinical services designed for these youth are on the rise. However, the research base for such services has yet to be evaluated. A systematic review of studies on intervention and support for siblings of youth with DDs was conducted in order to evaluate the current state of the literature and provide recommendations for research and practice. Sixteen articles were selected and reviewed in terms of their experimental design, participant characteristics, measurement, intervention or support group protocol, outcomes, and dissemination of findings. Results indicate substantial variability in both methodology and outcomes across sibling-focused intervention and support group studies, which put the overall effects and utility of these services into question. Recommendations for future research are outlined, with a focus on advancing a more systematic and careful approach to asking and effectively answering questions about siblings, their families, and meaningful services for both.

摘要

患有发育障碍 (DD) 的青年的兄弟姐妹的数量以及为这些青年设计的临床服务的普及度都在上升。然而,此类服务的研究基础尚未得到评估。为了评估文献的现状并为研究和实践提供建议,对针对患有 DD 的青年的兄弟姐妹的干预措施和支持进行了系统的文献回顾。从实验设计、参与者特征、测量、干预或支持小组方案、结果以及研究结果的传播等方面选择并回顾了 16 篇文章。结果表明,以兄弟姐妹为重点的干预措施和支持小组研究在方法和结果方面存在很大差异,这使得这些服务的整体效果和实用性受到质疑。概述了对未来研究的建议,重点是对兄弟姐妹、他们的家庭以及对两者都有意义的服务提出和有效回答问题的方法进行更系统和更仔细的改进。

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JCPP Adv. 2025 Jan 23;5(2):e12300. doi: 10.1002/jcv2.12300. eCollection 2025 Jun.
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Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders.作为慢性疾病患儿兄弟姐妹心理健康预测指标的疾病类型和严重程度
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Daily life situations and participation of siblings of children with childhood-onset disabilities: a scoping review.

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