• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

恢复患者的声音。疾病叙事的治疗方法。

Restoring the patient's voice. The therapeutics of illness narratives.

作者信息

Sakalys Jurate A

机构信息

University of Colorado Health Sciences Center, School of Nursing, USA.

出版信息

J Holist Nurs. 2003 Sep;21(3):228-41. doi: 10.1177/0898010103256204.

DOI:10.1177/0898010103256204
PMID:14528848
Abstract

Reflective and insightful autobiographical accounts of illness not only illuminate fundamental disruptions in selfhood and continuity of life that accompany illness, but authors of such accounts also maintain that narration is an important way to make sense of an illness episode, to restore personhood and connectedness, and to reclaim the illness experience from the medical meta-narrative. That witnessing and helping to order illness narratives can be a caring/healing nursing practice modality with significant healing potential is supported both by narrative theory and by nursing's theoretical and philosophical legacy. The challenge for the nurse guided by narrative ideas is to give primacy to the patient's voice, to listen for meaning rather than for facts, and to provide a relationship enabling the evolution of the patient's story.

摘要

对疾病的反思性和深刻的自传式叙述不仅揭示了疾病所伴随的自我认知和生活连续性的根本破坏,而且这些叙述的作者还认为,叙述是理解疾病发作、恢复人格和联系以及从医学元叙事中夺回疾病体验的重要方式。叙事理论以及护理的理论和哲学遗产都支持这样一种观点,即见证并帮助整理疾病叙事可以成为一种具有巨大治愈潜力的关怀/治愈护理实践方式。以叙事理念为指导的护士面临的挑战是将患者的声音置于首位,倾听其中的意义而非事实,并提供一种能让患者的故事得以展开的关系。

相似文献

1
Restoring the patient's voice. The therapeutics of illness narratives.恢复患者的声音。疾病叙事的治疗方法。
J Holist Nurs. 2003 Sep;21(3):228-41. doi: 10.1177/0898010103256204.
2
The whole story: towards an ethical research methodology.完整的故事:迈向一种伦理研究方法。
Nurse Res. 2002;10(1):15-29. doi: 10.7748/nr2002.10.10.1.15.c5876.
3
Optimal healing environments in nursing.护理中的最佳康复环境。
J Altern Complement Med. 2004;10 Suppl 1:S43-8. doi: 10.1089/1075553042245935.
4
"There's just something about Ron": one nurse's healing presence amidst failing hearts.“罗恩身上就是有那么一种特质”:一位护士在心脏衰竭患者中带来的治愈力量。
J Holist Nurs. 2008 Dec;26(4):303-7. doi: 10.1177/0898010108315186. Epub 2008 May 2.
5
Embodying nursing openheartedness: an existential perspective.体现护理的热忱:一种存在主义视角。
J Holist Nurs. 2009 Jun;27(2):141-9. doi: 10.1177/0898010108323303. Epub 2009 Jan 31.
6
Pain narratives and narrative practitioners: a way of working 'in-relation' with children experiencing pain.疼痛叙事与叙事从业者:一种与经历疼痛的儿童“建立关联”的工作方式。
J Nurs Manag. 2004 May;12(3):210-6. doi: 10.1046/j.1365-2834.2003.00440.x.
7
Intentionality: evolutionary development in healing: a grounded theory study for holistic nursing.意向性:愈合中的进化发展:一项整体护理的扎根理论研究
J Holist Nurs. 2005 Mar;23(1):89-109. doi: 10.1177/0898010104272026.
8
Caring presence. Delineation of a concept for holistic nursing.关怀陪伴:整体护理概念的阐述
J Holist Nurs. 2003 Sep;21(3):301-17. doi: 10.1177/0898010103254915.
9
An interpretive phenomenological method for illuminating the meaning of caring relationship.一种用于阐明关怀关系意义的解释现象学方法。
Scand J Caring Sci. 2006 Mar;20(1):42-50. doi: 10.1111/j.1471-6712.2006.00378.x.
10
Cultivating a narrative sensibility in nursing practice.在护理实践中培养叙事敏感性。
J Holist Nurs. 2015 Mar;33(1):98-102. doi: 10.1177/0898010114536633. Epub 2014 Jun 5.

引用本文的文献

1
Biography Writing in the Pediatric Palliative Care Context: Review and Feasibility Data.儿科姑息治疗背景下的传记写作:综述与可行性数据
Children (Basel). 2024 Dec 24;12(1):4. doi: 10.3390/children12010004.
2
Conquering diabetes by overcoming psychological barriers and embracing health.通过克服心理障碍和拥抱健康来战胜糖尿病。
Sci Rep. 2024 Dec 30;14(1):32104. doi: 10.1038/s41598-024-83837-y.
3
Scaffolding patient agency: Conceptualising readers' cognitive work in the comic gutter.搭建患者能动性:将漫画留白处读者的认知工作概念化。
Health (London). 2025 Jul;29(4):510-528. doi: 10.1177/13634593241290184. Epub 2024 Oct 17.
4
Illness Narratives Without the Illness: Biomedical HIV Prevention Narratives from East Africa.《没有疾病的疾病叙事:来自东非的生物医学 HIV 预防叙事》。
J Med Humanit. 2024 Dec;45(4):345-368. doi: 10.1007/s10912-024-09862-0. Epub 2024 Jun 26.
5
Rose's second life after ICU: a tale of post-traumatic growth.罗丝在重症监护病房后的第二次人生:一个创伤后成长的故事。
Intensive Care Med. 2023 Nov;49(11):1436-1437. doi: 10.1007/s00134-023-07241-2. Epub 2023 Oct 9.
6
Exploring the Impact of Storytelling for Hospitalized Patients Recovering from COVID-19.探索叙事疗法对新冠肺炎康复期住院患者的影响。
Healthcare (Basel). 2023 Feb 16;11(4):589. doi: 10.3390/healthcare11040589.
7
: The Development of an Online, Arts-Based Palliative Care Programme in the Shadow of the COVID-19 Pandemic.: 在线艺术为基础的姑息治疗方案的开发在 COVID-19 大流行的阴影下。
Omega (Westport). 2023 Mar;86(4):1349-1370. doi: 10.1177/00302228211009753. Epub 2021 Apr 11.
8
The impact of a "narrative interview" intervention in oncology. A study protocol for a feasibility study.“叙事访谈”干预在肿瘤学中的影响。一项可行性研究的研究方案。
Acta Biomed. 2020 Jun 20;91(6-S):38-47. doi: 10.23750/abm.v91i6-S.10016.
9
"It's like a mirror image of my illness": Exploring Patient Perceptions About Illness Using Health Mind Mapping-a Qualitative Study.“这就像是我疾病的镜像”:使用健康思维导图探索患者对疾病的认知——一项定性研究。
J Gen Intern Med. 2018 Oct;33(10):1692-1699. doi: 10.1007/s11606-018-4557-9. Epub 2018 Jul 10.
10
A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network.一扇了解未确诊疾病患者生活的窗口:来自未确诊疾病网络的患病经历叙述
Orphanet J Rare Dis. 2017 Apr 17;12(1):71. doi: 10.1186/s13023-017-0623-3.