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我们是否需要一份针对透析患者的特定营养生活质量问卷?

Do we need a nutrition-specific quality of life questionnaire for dialysis patients?

作者信息

Buckner Sarah, Dwyer Johanna

机构信息

Frances Stern Nutrition Center, Tufts-New England Medical Center, Boston, MA 02111, USA.

出版信息

J Ren Nutr. 2003 Oct;13(4):295-302. doi: 10.1016/s1051-2276(03)00119-5.

Abstract

Food, eating, and quality of life are intimately related. Available generic and disease-specific health-related quality of life (HRQOL) instruments address nutrition only with respect to the ability to eat and omit more dynamic components of nutrition such as sensory enjoyment of food and food intake. For improved assessment and monitoring of nutrition-related quality of life in hemodialysis patients, a nutrition-specific questionnaire is recommended, consisting of two tools: the Appetite and Dietary Assessment Tool (ADAT), already used in many dialysis clinics, and the nutrition-specific Food Enjoyment in Dialysis (FED) questionnaire which asks 10 additional questions on sensory changes, thirst, gastrointestinal symptoms, side effects from medications and/or dialysis, and feelings of satisfaction and control. This nutrition-specific information should permit comprehensive evaluation and monitoring of changes in nutrition related quality of life. When coupled with generic and disease specific tools, it will provide a complete picture of quality of life in hemodialysis patients.

摘要

食物、饮食与生活质量密切相关。现有的通用型和疾病特异性健康相关生活质量(HRQOL)评估工具仅从进食能力方面考量营养问题,而忽略了营养中更具动态性的因素,如对食物的感官享受和食物摄入量。为了更好地评估和监测血液透析患者与营养相关的生活质量,建议使用一份专门针对营养的问卷,该问卷由两个工具组成:许多透析诊所已经使用的食欲和饮食评估工具(ADAT),以及专门针对营养的透析食物享受(FED)问卷,后者就感官变化、口渴、胃肠道症状、药物和/或透析的副作用以及满意度和控制感等方面额外提出10个问题。这些特定于营养的信息应能对与营养相关的生活质量变化进行全面评估和监测。当与通用型和疾病特异性工具结合使用时,它将全面呈现血液透析患者的生活质量状况。

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