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白血病患儿及其父母的心理社会研究。

Psychosocial study of leukemic children and their parents.

作者信息

Rao G P, Malhotra S, Marwaha R K

机构信息

Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh.

出版信息

Indian Pediatr. 1992 Aug;29(8):985-90.

PMID:1459720
Abstract

Psychosocial assessment was carried out in 35 children with acute lymphatic leukemic, an equal number with non-leukemic chronic illness and their parents. Psychological dysfunction existed more frequently in parents of leukemic children. Depression as an initial reaction on being conveyed the diagnosis, was seen in 85.8% whilst anger was observed in 42.8%. Majority (89.7%) entertained doubts about whether a correct diagnosis has been established. Understanding of the disease, its possible course and the need for prolonged treatment, was appreciated by about 65.7% of parents. The disease imposed serious social, financial and occupational burdens on the family. Measures used to cope with such stresses included meeting close friends and relatives and finding solace in religious activities. When comparing psychopathology in leukemic children with that in chronically ill non-leukemic counterparts, significant differences were observed in certain specific syndrome scores. Conduct disorder, anxiety, depression and psychotic symptoms were more prevalent in leukemic children. This study emphasizes the necessity of active psychosocial intervention in the total care of childhood leukemia.

摘要

对35名急性淋巴细胞白血病患儿、数量相等的患有非白血病慢性病的患儿及其父母进行了心理社会评估。白血病患儿的父母中,心理功能障碍更为常见。在得知诊断结果时,85.8%的父母最初表现出抑郁,42.8%的父母表现出愤怒。大多数(89.7%)对是否已确诊存在疑虑。约65.7%的父母了解疾病、其可能的病程以及长期治疗的必要性。该疾病给家庭带来了严重的社会、经济和职业负担。用于应对此类压力的措施包括与亲密的朋友和亲戚见面以及从宗教活动中寻求慰藉。在比较白血病患儿与患有慢性病的非白血病患儿的精神病理学情况时,在某些特定综合征评分上观察到了显著差异。品行障碍、焦虑、抑郁和精神病性症状在白血病患儿中更为普遍。本研究强调了在儿童白血病全面护理中进行积极心理社会干预的必要性。

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