Mazur Joanna, Mierzejewska Ewa
Zakład Epidemiologii, Instytut Matki i Dziecka, ul. Kasprzaka 17a, 01-211 Warszawa, Poland.
Med Wieku Rozwoj. 2003 Jan-Mar;7(1 Pt 2):35-48.
The importance of subjective health measures has increased over the recent years. Prevention of acute and chronic diseases and early intervention in children depend upon availability of measures that can be routinely used for monitoring purposes. Traditional outcome measures (survival, laboratory tests) have limited value when assessing health status of chronically ill persons or screening population. Research on quality of life has a solid methodological background. High importance is attached to psychometric characteristics of developed questionnaires. However, only a few (especially generic) instruments have been developed for children and youth. The aim of the study is: 1) to describe the main concepts and methods in quality of life research in relation to paediatric practice; 2) to present the KIDSCREEN project sponsored by European Commission, currently in progress. The KIDSCREEN multicenter project is being developed by 13 European countries, including Poland, within the 5th Framework Programme Quality of Life and Management of Living Resources. The project will provide the opportunity to measure the HRQL in children and adolescents across different countries and cultures using a standardized multidimensional instrument developed at the same time in all participating countries. It is expected that it will improve medical, psychological and educational care of children and adolescents and will be very useful in changing the system of preventive health care provided in Polish schools. Applying the KIDSCREEN questionnaire in selected EU candidate countries will anticipate the problems that could affect other countries in the same economic situation.
近年来，主观健康指标的重要性日益增加。预防急慢性疾病以及对儿童进行早期干预，取决于是否有可常规用于监测目的的指标。在评估慢性病患者的健康状况或对人群进行筛查时，传统的结果指标（生存率、实验室检查）价值有限。生活质量研究有坚实的方法学背景。人们高度重视所开发问卷的心理测量学特征。然而，针对儿童和青少年开发的（尤其是通用型）工具却很少。本研究的目的是：1）描述与儿科实践相关的生活质量研究中的主要概念和方法；2）介绍由欧盟委员会赞助、目前正在进行的儿童生活质量评价量表（KIDSCREEN）项目。KIDSCREEN多中心项目由包括波兰在内的13个欧洲国家在第五个框架计划“生活质量与生活资源管理”下开展。该项目将提供机会，使用所有参与国同时开发的标准化多维工具，对不同国家和文化背景下的儿童和青少年的健康相关生活质量进行测量。预计该项目将改善儿童和青少年的医疗、心理和教育护理，并将对改变波兰学校提供的预防性医疗保健系统非常有用。在选定的欧盟候选国家应用KIDSCREEN问卷，将预见可能影响处于相同经济状况的其他国家的问题。
