Chmielik Lechosław Paweł, Mielnik-Niedzielska Grażyna, Kasprzyk Anna, Niedzielski Artur
Department of Pediatric Otolaryngology, Centre of Postgraduate Medical Education, Warsaw, Poland.
Department of Pediatric ENT, The Children's Hospital in Dziekanów Leśny, Dziekanów Leśny, Poland.
Front Pediatr. 2023 Jan 11;10:1077198. doi: 10.3389/fped.2022.1077198. eCollection 2022.
The health-related quality of life (HRQoL) concept is nowadays increasingly and more broadly used for helping evaluate the effectiveness of medical treatment, superseding the earlier "quality of life" approach. The HRQoL concept likewise applies to otolaryngology and this narrative review study is focused on HRQoL outcomes in four key childhood otolaryngological diseases as reported in the literature.
To retrospectively evaluate the literature on measuring HRQoL in children suffering from selected otolaryngological illnesses, during treatment.
Published studies/case reports were searched for in Medline, PubMed, Web of Science, Scopus and ORCID on the quality of life based on paediatric patient questionnaires, whether completed by subjects themselves or by their parents (by proxy). The following key words were used: health quality of life, otolaryngology/ENT, pediatrics/paediatrics. Studies before 1999 were omitted because hitherto, the "quality of life" had been imprecisely defined thus rendering any subsequent comparisions problematic.
HRQoL scores and well-being were found to significantly deteriorate in child patients suffering from four important otolaryngological disorders: chronic sinusitis, nasal septum deviation, adenoid hypertrophy and hearing disease. The main problems found were infection, inflammation, disruption to family life and child-parental interaction, fitness-related issues, reduced ENT patencies and apnea.
The HRQoL appears to significantly deteriorate in children suffering from otolaryngological diseases. Further such studies are needed for other ENT diseases.
如今，健康相关生活质量（HRQoL）概念越来越广泛地用于帮助评估医疗效果，取代了早期的“生活质量”方法。HRQoL概念同样适用于耳鼻喉科，本叙述性综述研究聚焦于文献中报道的四种儿童耳鼻喉科关键疾病的HRQoL结果。
回顾性评估关于在选定耳鼻喉科疾病患儿治疗期间测量HRQoL的文献。
在Medline、PubMed、科学网、Scopus和ORCID中搜索已发表的研究/病例报告，这些研究基于儿科患者问卷（无论由受试者本人还是其父母（代理）填写）的生活质量。使用了以下关键词：健康生活质量、耳鼻喉科/ENT、儿科/儿科学。1999年以前的研究被排除，因为迄今为止，“生活质量”定义不精确，导致后续任何比较都存在问题。
发现患有四种重要耳鼻喉科疾病（慢性鼻窦炎、鼻中隔偏曲、腺样体肥大和听力疾病）的儿童患者的HRQoL评分和幸福感显著下降。发现的主要问题包括感染、炎症、家庭生活和亲子互动受到干扰、与健康相关的问题、耳鼻喉通畅性降低和呼吸暂停。
患有耳鼻喉科疾病的儿童的HRQoL似乎显著下降。对于其他耳鼻喉科疾病，还需要进一步开展此类研究。
