Schneider Robert A
University of Northern Iowa, Cedar Falls, IA 50613, USA.
J Clin Nurs. 2004 Feb;13(2):219-25. doi: 10.1046/j.1365-2702.2003.00860.x.
Quality of life for caregivers of end-stage renal disease patients has not been well addressed yet the physical and psychological status of this overlooked group can be important in the recovery or adaptation of patients with chronic renal failure, not to mention the caregivers themselves. One particular feature of the overall quality of life of such caregivers is that of fatigue.
The purpose of the study was to test the Fatigue Severity Scale for potential usefulness in assessing fatigue among a non-medical population, caregivers of end-stage renal disease patients.
Subjects completed a short battery of measures at either a dialysis centre or at home.
The Short Form-12 of the Short Form-36 and the Center for Epidemiologic Studies Depression Scale accounted for 56% of the variance on the Fatigue Severity Scale. The results suggest that physical fatigue may be more prominent than mental fatigue as a feature of caregiver quality of life.
The Fatigue Severity Scale which has been used for multiple sclerosis patients may prove to be useful as a short assessment of fatigue among the non-medical population of end-stage renal disease caregivers. This may result in improved interventions for the population of caregivers.
Physicians, nurses and allied health professionals will be called on more frequently to assess and intervene with fatigued and overburdened caregivers in addition to patients themselves. A more thorough understanding of the nature of caregiver fatigue may drive changes or innovations with caregivers who are too often overlooked in the current era of scarce resources. Accordingly results of the study suggest that the direction in intervention may focus more on rest and respite as opposed to a need for psychosocial support or counselling. While there are various modes for assessing end-stage renal disease caregivers' fatigue, a simple measure like the Fatigue Severity Scale is brief enough to be administered without undue demand on practitioners or caregivers.
终末期肾病患者照料者的生活质量尚未得到充分关注,然而这一被忽视群体的身心状况对于慢性肾衰竭患者的康复或适应至关重要,更不用说照料者自身了。这类照料者总体生活质量的一个显著特征就是疲劳。
本研究旨在测试疲劳严重程度量表在评估终末期肾病患者照料者这一非医疗人群疲劳状况方面的潜在效用。
研究对象在透析中心或家中完成一组简短的测评。
简短健康调查问卷简表12和流行病学研究中心抑郁量表解释了疲劳严重程度量表56%的方差变异。结果表明,作为照料者生活质量的一个特征,身体疲劳可能比精神疲劳更为突出。
已用于多发性硬化症患者的疲劳严重程度量表,可能被证明可有效用于简短评估终末期肾病患者照料者这一非医疗人群的疲劳状况。这可能会改善针对照料者群体的干预措施。
除了患者自身,医生、护士及相关健康专业人员将更频繁地被要求评估并干预疲惫不堪、负担过重的照料者。更深入地了解照料者疲劳的本质,可能会促使在当前资源稀缺的时代,对那些常常被忽视的照料者做出改变或创新。因此,研究结果表明干预方向可能更多地侧重于休息和缓解,而非心理社会支持或咨询的需求。虽然有多种评估终末期肾病患者照料者疲劳的方式,但像疲劳严重程度量表这样简单的测量方法足够简短,在实施时不会对从业者或照料者造成过多负担。