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终末期肾病青少年参加融入主流的夏令营活动的益处。

Benefits of a mainstreamed summer camp experience for teens with ESRD.

作者信息

Klee K M

机构信息

Children's Hospital and Medical Center, Seattle, WA.

出版信息

Adv Perit Dial. 1992;8:423-5.

PMID:1361839
Abstract

This is a report on a pilot project integrating children with end stage renal disease (ESRD) with well children for a summer camp experience. As the teen with ESRD prepares to enter the work force and college, he/she will have to adapt to a variety of situations that will not adapt to his/her unique medical condition. These issues motivated a pilot project in which 9 ESRD children were mainstreamed into a 2 week, YMCA summer camp experience. Pre and post questionnaires were developed and distributed to the camper, family, and the cabin counselor along with interviews to assess the value of the experience. All the children left camp more independent and knowledgeable about their self-care. The results of this pilot project indicate that children with ESRD can adapt to their environment and increase independence, self-care and self-esteem through supervised mainstreamed experiences.

摘要

这是一份关于一个试点项目的报告,该项目将终末期肾病(ESRD)儿童与健康儿童整合在一起,让他们体验夏令营活动。随着患有ESRD的青少年准备进入职场和大学,他/她将不得不适应各种无法适应其独特病情的情况。这些问题促使开展了一个试点项目,将9名ESRD儿童融入为期两周的基督教青年会夏令营体验中。项目开发了前后调查问卷,并分发给营员、家庭和小屋辅导员,同时进行访谈以评估这次体验的价值。所有孩子离开营地时都变得更加独立,并且对自我护理有了更多了解。这个试点项目的结果表明,患有ESRD的儿童可以通过有监督的融入主流环境的体验来适应他们的环境,并提高独立性、自我护理能力和自尊心。

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