Wen Kuang-Yi, Gustafson David H
Center for Health Systems Research and Analysis, University of Wisconsin, 1107 WARF, 610 Walnut Street, Madison, WI53726, USA.
Health Qual Life Outcomes. 2004 Feb 26;2:11. doi: 10.1186/1477-7525-2-11.
The assessment of needs for cancer care is a critical step in providing high quality care and achieving cancer patients' and families' satisfaction. Instruments can be used to assess needs and guide cancer care planning. This study discusses the importance of the needs assessment, relationships between needs, satisfaction and quality of life; and reviews the assessment instruments of needs experienced by cancer patients and their families.
A systematic search was conducted in MEDLINE and CANCERLIT data bases. Instruments were evaluated based on their conceptual and measurement models as well as their demonstrated reliability and validity. The authors also sought information pertaining to instruments' burden of administration and responsiveness. Measures compromised by a lack of published psychometric description were not included.
This search identified 17 patient needs assessment instruments and seven family needs assessment instruments. The development and psychometric proprieties of most of these instruments were well documented. However, data on their responsiveness and burden of administration were scarce.
Each selected instrument meets some but not all of our criteria for validity, reliability, responsiveness and burden. It is questionable whether any instrument can be developed meeting all the requirements. However, there is still a need to continue researching and developing needs assessment instruments leading to effective intervention and improving quality of cancer care.
评估癌症护理需求是提供高质量护理以及实现癌症患者及其家属满意度的关键步骤。可使用工具来评估需求并指导癌症护理规划。本研究探讨了需求评估的重要性、需求、满意度和生活质量之间的关系；并回顾了癌症患者及其家属所经历需求的评估工具。
在MEDLINE和CANCERLIT数据库中进行了系统检索。根据工具的概念和测量模型以及已证明的信度和效度对工具进行评估。作者还收集了有关工具管理负担和反应性的信息。因缺乏已发表的心理测量描述而存在缺陷的测量方法未被纳入。
该检索识别出17种患者需求评估工具和7种家属需求评估工具。这些工具中大多数的开发过程和心理测量特性都有详细记录。然而，关于它们的反应性和管理负担的数据却很稀少。
每种所选工具都满足了我们关于效度、信度、反应性和负担的部分而非全部标准。是否能开发出满足所有要求的工具值得怀疑。然而，仍有必要继续研究和开发需求评估工具，以实现有效干预并提高癌症护理质量。
