Prue Gillian, Santin Olinda, Porter Sam
School of Nursing and Midwifery, Queen's University Belfast, Medical Biology Centre, 97 Lisburn Road, Belfast, BT9 7BL, UK.
Psychooncology. 2015 Feb;24(2):121-9. doi: 10.1002/pon.3609. Epub 2014 Jun 14.
Cancer may impact negatively on an informal caregiver's health long after treatment has ended. This review identifies the self-report measures currently in use to measure caregivers need for support and determines their scientific soundness and clinical utility.
A systematic electronic database search of Medline, CINAHL, PsychINFO, BNI ProQuest was conducted. The psychometric properties and clinical utility of needs assessment tools for caregivers of cancer survivors (excluding advanced disease) were extracted and summarised.
Seven cancer survivor caregiver needs assessment tools were identified. Data on instrument development was well reported, although variability was noted in their structure and content. The majority demonstrated some degree of reliability and validity; only two were evaluated for test-retest reliability (CaSPUN and SPUNS) with only the SPUNS showing a high degree of reliability over time. The Health Care Needs Survey (HCNS), Needs Assessment of Family Caregivers-Cancer (NAFC-C) and Cancer Caregiving Tasks Consequences and Needs Questionnaire (CaTCoN) have been validated at various stages of the cancer continuum. Minimal data was available on responsiveness.
All assessment tools identified require further psychometric analysis. For research purposes, the use of the SPUNS (with its acceptable test-retest reliability) appears most appropriate; although its length may be of concern for clinical use; therefore, the shorter SCNS-P&C is likely to be more suitable for use clinically. At present, the NAFC-C demonstrates a great potential in both the research and clinical environments; however, it requires further psychometric testing before it can be fully recommended. Further analysis is necessary on ideal response formats and the meaning of a total needs score.
癌症治疗结束很久之后，仍可能对非正式照料者的健康产生负面影响。本综述确定了目前用于衡量照料者支持需求的自我报告测量方法，并确定其科学合理性和临床实用性。
对Medline、CINAHL、PsychINFO、BNI ProQuest进行系统的电子数据库检索。提取并总结了癌症幸存者（不包括晚期疾病）照料者需求评估工具的心理测量特性和临床实用性。
确定了七种癌症幸存者照料者需求评估工具。关于工具开发的数据报告充分，尽管其结构和内容存在差异。大多数工具显示出一定程度的信度和效度；只有两项工具（CaSPUN和SPUNS）进行了重测信度评估，只有SPUNS随着时间推移显示出高度的信度。医疗保健需求调查（HCNS）、癌症家庭照料者需求评估（NAFC-C）和癌症照料任务后果与需求问卷（CaTCoN）已在癌症连续统一体的各个阶段得到验证。关于反应性的数据很少。
所有确定的评估工具都需要进一步的心理测量分析。出于研究目的，使用SPUNS（其重测信度可接受）似乎最合适；尽管其长度可能在临床使用中受到关注；因此，较短的SCNS-P&C可能更适合临床使用。目前，NAFC-C在研究和临床环境中都显示出巨大潜力；然而，在完全推荐之前，它需要进一步的心理测量测试。有必要对理想的反应格式和总需求得分的含义进行进一步分析。
