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家庭照顾者在非工作时间接受社区姑息治疗的经历:一项定性研究。

Family carers' experiences of out-of-hours community palliative care: a qualitative study.

作者信息

King Nigel, Bell Dennise, Thomas Keri

机构信息

Primary Care Research Group, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield HD1 3DH, UK.

出版信息

Int J Palliat Nurs. 2004 Feb;10(2):76-83. doi: 10.12968/ijpn.2004.10.2.12457.

Abstract

Carers' feelings of uncertainty and anxiety can be particularly acute out-of-hours, when they may not have access to familiar sources of professional help and advice. The present study used qualitative semi-structured interviews to explore carers' experiences of out-of-hours care and support services. Fifteen bereaved carers in the Calderdale and Kirklees area were interviewed, and the interview transcripts analysed thematically. In general, carers felt well supported out-of-hours, especially by the nursing services. They appreciated opportunities to develop some degree of personal relationship with those they saw out-of-hours. However, in some cases problems were apparent. These were associated with poor provision of information, inadequate communication with carers, difficulties in accessing night-sitter services, or the inflexibility of services. The findings underline the importance of primary care practitioners taking an anticipatory approach to community palliative care.

摘要

在非工作时间,照顾者的不确定感和焦虑感可能会尤为强烈,因为此时他们可能无法获得熟悉的专业帮助和建议来源。本研究采用定性半结构化访谈来探索照顾者在非工作时间的护理和支持服务体验。对卡尔德代尔和柯克利斯地区的15名丧亲照顾者进行了访谈,并对访谈记录进行了主题分析。总体而言,照顾者在非工作时间得到了良好的支持,尤其是护理服务。他们珍视与在非工作时间见到的人建立某种程度的个人关系的机会。然而,在某些情况下,问题显而易见。这些问题与信息提供不足、与照顾者沟通不畅、获得夜间护理服务困难或服务缺乏灵活性有关。研究结果强调了初级保健从业者对社区姑息治疗采取前瞻性方法的重要性。

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