Exley Catherine, Tyrer Freya
Centre for Health Services Research, School of Population and Health Sciences University of Newcastle, 21 Claremont Place, Newcastle upon Tyne, UK.
Int J Palliat Nurs. 2005 May;11(5):242-6. doi: 10.12968/ijpn.2005.11.5.242.
In recent years, there has been an increase in specialist palliative care services in the home. Despite this, there have been relatively few published evaluations of such care.
This is a qualitative study which used semistructured interviews to explore bereaved carers' views and experiences of a hospice at home (HAH) service in the East Midlands, UK. Eleven interviews were conducted and analysis followed the framework approach.
Carers' views were divided into four themes: caring for someone at home; formal care provided by HAH; access to out-of-hours care; and provision of specialist equipment.
Bereaved carers generally gave very positive accounts on care delivered by the HAH service. Shortcomings identified were the provision of out-of-hours care and the untimely supply and removal of specialist equipment. It is suggested that bereaved carers provide useful insights for qualitative evaluations of end-of-life services delivered in the home.
近年来，居家专科姑息治疗服务有所增加。尽管如此，对此类护理的已发表评估相对较少。
这是一项定性研究，采用半结构化访谈来探讨英国东米德兰兹地区丧亲照料者对居家临终关怀（HAH）服务的看法和经历。进行了11次访谈，并采用框架法进行分析。
照料者的看法分为四个主题：在家照顾某人；HAH提供的正规护理；非工作时间护理的获取；以及专业设备的提供。
丧亲照料者总体上对HAH服务提供的护理给予了非常积极的评价。发现的不足之处是非工作时间护理的提供以及专业设备供应和移除的不及时。建议丧亲照料者为居家提供的临终服务的定性评估提供有用的见解。
