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项目合作伙伴:为公众参与健康与社会护理研究做准备。

Partners in projects: preparing for public involvement in health and social care research.

作者信息

Parkes Jacqueline H, Pyer Michelle, Wray Paula, Taylor Jane

机构信息

Institute for Health and Wellbeing, The University of Northampton, Boughton Green Road, Northampton NN2 7AL, United Kingdom.

NIHR Collaboration for Leadership in Applied Health Research and Care, (CLAHRC) East Midlands, Room 3, Academic Unit, Leicester General Hospital, Gwendolen Road, Leicester LE5 4PW, United Kingdom.

出版信息

Health Policy. 2014 Sep;117(3):399-408. doi: 10.1016/j.healthpol.2014.04.014. Epub 2014 May 21.

Abstract

In recent years, several UK and, international funders of health and social care related research have adopted the policy of requiring explicit evidence of the 'public' voice in all aspects of project design. For many academic researchers engaged within research, evaluations or audit projects, this formal requirement to actively engage members of the public will present them with both benefits and challenges to securing knowledgeable, skilled, and confident lay representation onto project teams. This could potentially lead to the exploitation of those individuals who are available, appropriately informed, and adequately prepared for such activities. Currently, much of the preparation of patients or members of the public for research involvement tends to be aligned to specific projects; however, with the call for greater active and meaningful involvement of lay representatives in future national and international funding applications, there is clearly a growing need to 'train' sufficient numbers of confident and competent representatives to meet this growing demand. This paper describes the development of a specifically designed research awareness training programme and underpinning theoretical model, which has been specifically designed to support active and meaningful lay involvement in research, evaluations and audit projects. Developed over a four year period, the course is a culmination of learning extracted from a series of four completed research projects, which have incorporated an element of public and patient involvement (PPI) training in their overall design.

摘要

近年来,英国及一些国际健康与社会护理相关研究的资助者采取了一项政策,要求在项目设计的各个方面都有明确的“公众”声音的证据。对于许多从事研究、评估或审计项目的学术研究人员来说,积极吸纳公众成员的这一正式要求,在确保有知识、有技能且自信的非专业人员加入项目团队方面,既带来了好处,也带来了挑战。这可能会导致对那些有空参与、信息充分且为这类活动做好充分准备的个人的利用。目前,让患者或公众为参与研究做准备的工作大多与特定项目相关;然而,随着未来国家和国际资助申请中要求非专业代表更积极、更有意义地参与,显然越来越需要“培训”足够数量自信且有能力的代表来满足这一不断增长的需求。本文描述了一个专门设计的研究意识培训项目及其基础理论模型的开发过程,该项目专门旨在支持非专业人员积极、有意义地参与研究、评估和审计项目。该课程历时四年开发而成,是从一系列四个已完成的研究项目中提炼的学习成果的结晶,这些项目在总体设计中都融入了公众和患者参与(PPI)培训元素。

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