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新诊断为胃肠道癌症的中国患者的症状、心理困扰、社会支持和生活质量。

Symptoms, psychological distress, social support, and quality of life of Chinese patients newly diagnosed with gastrointestinal cancer.

作者信息

Yan Hu, Sellick Ken

机构信息

School of Nursing, Fudan University, 305 Fenglin Road, Shanghai 200-032, People's Republic of China.

出版信息

Cancer Nurs. 2004 Sep-Oct;27(5):389-99. doi: 10.1097/00002820-200409000-00009.

Abstract

This study aims to describe symptoms, psychological distress, social support, and quality of life of Chinese patients newly diagnosed with gastrointestinal tract (GIT) cancer, and to identify the extent to which demographic, physical, and psychosocial factors predict their quality of life. A convenience sample of 146 newly diagnosed GIT cancer patients recruited from 3 major hospitals in Shanghai completed a self-report questionnaire. The questionnaire was designed to obtain demographic and medical data and measures of symptoms, psychological distress, social support, health-related quality of life (HRQoL), and global quality of life (GQoL). Measures developed in English were translated into Chinese using the procedure advocated by WHO. The results showed that the most common signs and symptoms reported were fatigue, pain, and weight loss; 28% of the patients were depressed; and overall, patients had a moderate quality of life. Comparative analyses found some difference on measures for demographic and diagnostic subgroups. Depression, symptom distress, and social support accounted for 44% of the total variance for HRQoL, while perceived financial difficulty and symptom distress accounted for 20% of the total variance for GQoL. Findings from this research give insights into the importance of quality of life assessment, symptom management, and intervention to improve the quality of life of Chinese cancer patients. It also raises questions about measures of quality of life that are culturally relevant.

摘要

本研究旨在描述新诊断为胃肠道(GIT)癌症的中国患者的症状、心理困扰、社会支持和生活质量,并确定人口统计学、身体和心理社会因素在多大程度上可预测其生活质量。从上海3家大型医院招募的146例新诊断为GIT癌症的患者组成了一个便利样本,他们完成了一份自我报告问卷。该问卷旨在获取人口统计学和医学数据以及症状、心理困扰、社会支持、健康相关生活质量(HRQoL)和总体生活质量(GQoL)的测量数据。用世界卫生组织倡导的程序将英文编制的测量工具翻译成中文。结果显示,报告的最常见体征和症状为疲劳、疼痛和体重减轻;28%的患者有抑郁症状;总体而言,患者的生活质量中等。比较分析发现,在人口统计学和诊断亚组的测量指标上存在一些差异。抑郁、症状困扰和社会支持占HRQoL总方差的44%,而感知到的经济困难和症状困扰占GQoL总方差的20%。本研究结果揭示了生活质量评估、症状管理和干预对改善中国癌症患者生活质量的重要性。它还提出了关于与文化相关的生活质量测量指标的问题。

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