支持者还是阻碍者；瑞典乳腺癌女性联系人活动的经验
Supporter or obstructer; experiences from contact person activities among Swedish women with breast cancer.
作者信息
Carlsson Christina, Nilbert Mef, Nilsson Kerstin
机构信息
Department of Oncology, Institute of Clinical Sciences Lund, Lund University, SE-221 85 Lund, Sweden.
出版信息
BMC Health Serv Res. 2005 Jan 25;5(1):9. doi: 10.1186/1472-6963-5-9.
BACKGROUND
Swedish patient associations for breast cancer patients (PABCPs) offer patients with breast cancer unlimited meetings with a breast cancer survivor, a contact person (CP). We applied the voluntary action perspective in this interview study with members of Swedish PABCPs in order to explore how women with breast cancer experienced their contact with a CP from a PABCP.
METHODS
Audio-taped narratives from 8 women were analysed using Reissman's monitoring and Gee's analysis structure.
RESULTS
Three themes appeared: 1. Shared experiences give new perspectives on having cancer, 2. Feelings of isolation are a part of the identity of the illness and 3. Relations with others enable self-help. However, the relationship with the CP is sensitive to timing, correct information and understanding.
CONCLUSIONS
CPs act as sounding boards and should optimally have capacity for listening, gives support and act as partner in this conversation. On the other hand, CPs should be aware that their presence and limited general medical knowledge could at times disturb the patient's psychological recovery and strengthen feelings of isolation. Thus, PABCPs must be careful in selecting CPs and offer relevant educational activities related to the themes identified herein.
背景
瑞典乳腺癌患者协会（PABCPs）为乳腺癌患者提供与乳腺癌幸存者即联系人（CP）进行不限次数会面的机会。在这项针对瑞典PABCPs成员的访谈研究中，我们运用自愿行动视角，以探究乳腺癌女性患者如何体验与来自PABCPs的联系人的接触。
方法
使用赖斯曼的监测方法和吉的分析结构，对8名女性的录音叙述进行了分析。
结果
出现了三个主题：1. 共同经历为患癌带来新视角；2. 孤独感是疾病特征的一部分；3. 与他人的关系促成自助。然而，与联系人的关系对时机、正确信息和理解较为敏感。
结论
联系人充当共鸣板，最佳状态是具备倾听能力、给予支持并在此对话中充当伙伴。另一方面，联系人应意识到他们的存在和有限的一般医学知识有时可能干扰患者的心理康复并强化孤独感。因此，PABCPs在选择联系人时必须谨慎，并提供与本文所确定主题相关的教育活动。
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