Bonner Melanie J, Hardy Kristina K, Guill Ann B, McLaughlin Colleen, Schweitzer Holly, Carter Karen
Box 3527, Duke University Medical Center, Durhum, NC 27710, USA.
J Pediatr Psychol. 2006 Apr;31(3):310-21. doi: 10.1093/jpepsy/jsj034. Epub 2005 May 25.
To develop a measure of parent adjustment related to caring for a child with a chronic illness and to evaluate the reliability and validity of the measure with a group of parents of children with brain tumors.
One-hundred forty-nine parents of patients (age <1-17 years) diagnosed with a brain tumor were assessed using the 25-item self-report Parent Experience of Child Illness (PECI). Internal consistency, construct validity, and factor structure were assessed.
Exploratory factor analysis yielded four theoretically coherent factors including: Guilt and Worry, Emotional Resources, Unresolved Sorrow and Anger, and Long-term Uncertainty. Internal reliability for the PECI scales ranged from .72 to .89, suggesting acceptable reliability. As evidence of construct validity, the PECI scales show significant, positive correlations with scales from established measures of parent adjustment.
The PECI augments the current literature by providing a brief measure of parents' subjective distress and perceived Emotional Resources, domains that are critical but understudied in children with chronic illness and their caregivers.
制定一项与照顾慢性病患儿相关的家长适应情况的测量方法，并对一组脑肿瘤患儿的家长进行该测量方法的信效度评估。
使用25项自评式《儿童疾病家长体验量表》（PECI）对149名被诊断患有脑肿瘤的患儿（年龄<1至17岁）的家长进行评估。评估了内部一致性、结构效度和因子结构。
探索性因子分析产生了四个理论上连贯的因子，包括：内疚与担忧、情感资源、未解决的悲伤与愤怒以及长期不确定性。PECI量表的内部信度在0.72至0.89之间，表明信度可接受。作为结构效度的证据，PECI量表与已确立的家长适应情况测量量表呈显著正相关。
PECI通过提供一种对家长主观痛苦和感知到的情感资源的简短测量方法，丰富了当前的文献，这些领域在慢性病患儿及其照顾者中至关重要但研究不足。
