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1
Patterns of Internet use by persons with spinal cord injuries and relationship to health-related quality of life.脊髓损伤患者的互联网使用模式及其与健康相关生活质量的关系。
Arch Phys Med Rehabil. 2004 Nov;85(11):1872-9. doi: 10.1016/j.apmr.2004.07.350.
2
Internet versus mailed questionnaires: a randomized comparison.网络问卷与邮寄问卷:一项随机对照比较
J Med Internet Res. 2004 Sep 15;6(3):e29. doi: 10.2196/jmir.6.3.e29.
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[Disease-oriented Internet use in outpatients with inflammatory rheumatic diseases].[炎症性风湿疾病门诊患者以疾病为导向的互联网使用情况]
Z Rheumatol. 2004 Jun;63(3):216-22. doi: 10.1007/s00393-004-0571-x.
4
Arthritis information on the Web and its influence on patients and physicians: a Korean study.网络上的关节炎信息及其对患者和医生的影响:一项韩国研究。
Clin Exp Rheumatol. 2004 Jan-Feb;22(1):49-54.
5
Internet-based patient education and support interventions: a review of evaluation studies and directions for future research.基于互联网的患者教育与支持干预措施:评估研究综述及未来研究方向
Comput Biol Med. 2004 Mar;34(2):95-112. doi: 10.1016/S0010-4825(03)00046-5.
6
Patients' use of the Internet for medical information.患者使用互联网获取医疗信息。
J Gen Intern Med. 2002 Mar;17(3):180-5. doi: 10.1046/j.1525-1497.2002.10603.x.
7
Provision of Internet-based rheumatology education (http://rheuma.bham.ac.uk).提供基于互联网的风湿病学教育(http://rheuma.bham.ac.uk)。
Rheumatology (Oxford). 2001 Jun;40(6):645-51. doi: 10.1093/rheumatology/40.6.645.
8
Surfing the Net--information on the World Wide Web for persons with arthritis: patient empowerment or patient deceit?网上冲浪——万维网上有关关节炎患者的信息:是患者赋权还是患者欺骗?
J Rheumatol. 2001 Jan;28(1):185-91.
9
Crawling through the Web: what do our patients find?在网络中探寻:我们的患者发现了什么?
J Rheumatol. 2001 Jan;28(1):1-2.
10
Review of computer-generated outpatient health behavior interventions: clinical encounters "in absentia".计算机生成的门诊健康行为干预措施综述:“虚拟”临床会诊
J Am Med Inform Assoc. 2001 Jan-Feb;8(1):62-79. doi: 10.1136/jamia.2001.0080062.

慢性病成年患者与疾病相关的互联网使用情况:当前及预期使用情况

Disease related use of the internet in chronically ill adults: current and expected use.

作者信息

van Lankveld W G J M, Derks A M, van den Hoogen F H J

机构信息

Department of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.

出版信息

Ann Rheum Dis. 2006 Jan;65(1):121-3. doi: 10.1136/ard.2004.035006. Epub 2005 May 26.

DOI:10.1136/ard.2004.035006
PMID:15919680
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1797987/
Abstract

OBJECTIVE

To determine discrepancies in patients' current use and expected future use of the internet for different functions.

METHOD

A short questionnaire was developed to assess patients' current use of the internet for three functions: "seeking information", "mutual support", and "care provider contact". This questionnaire was assessed online during 1 week. For each of the functions, scales were computed to assess frequency of use. The same items were used to assess patients' expected future use. Differences in scale score between current use and expected use were calculated to determine discrepancies.

RESULTS

220 patients completed the questionnaire. Patients are frequent users of the internet. The three functions are largely independent of each other and independent of the type of disease and demographics. Most often patient use the internet to find information about the disease or treatment. The discrepancy between current and expected use is largest for the function "care provider contact".

CONCLUSION

Based on these findings it seems that patients are most strongly interested in an increased possibility of using the internet to contact their healthcare providers.

摘要

目的

确定患者当前使用互联网实现不同功能的情况与未来预期使用情况之间的差异。

方法

设计了一份简短问卷,以评估患者当前使用互联网实现三种功能的情况:“获取信息”、“相互支持”和“联系医疗服务提供者”。该问卷在1周内进行在线评估。针对每种功能,计算量表以评估使用频率。使用相同的项目来评估患者未来的预期使用情况。计算当前使用情况与预期使用情况之间的量表得分差异,以确定差异所在。

结果

220名患者完成了问卷。患者是互联网的频繁使用者。这三种功能在很大程度上相互独立,且与疾病类型和人口统计学特征无关。患者最常使用互联网查找有关疾病或治疗的信息。“联系医疗服务提供者”功能的当前使用情况与预期使用情况之间的差异最大。

结论

基于这些发现,患者似乎对增加使用互联网联系其医疗服务提供者的可能性最感兴趣。