Whitlatch Carol J, Feinberg Lynn Friss, Tucke Shandra S
The Margaret Blenkner Research Institute, Benjamin Rose, 850 Euclid Avenue, Suite 1100, Cleveland, OH 44114, USA.
Gerontologist. 2005 Jun;45(3):370-80. doi: 10.1093/geront/45.3.370.
This study describes the development and psychometric properties of a 24-item scale to be used in both research and practice settings that assesses the everyday care values and preferences of individuals with cognitive impairment and the perceptions of family caregivers about their relative's values and preferences for care.
The Values and Preferences Scale was developed on the basis of previous measures used with cognitively intact samples with additional items generated by the authors in consultation with an advisory committee of practitioners, researchers, family caregivers, and persons with cognitive impairment. Individuals with mild to moderate cognitive impairment and their family caregivers (n = 111) were interviewed for the study.
Results of a factor analysis determined that the Values and Preferences Scale can be divided into two domains or subscales for persons with cognitive impairment and their family caregivers (i.e., Environment-Social Network and Personal Autonomy). These domains were found to have good internal consistency for both the individuals and their caregivers (Cronbach's alphas ranged from.70 to.82). Evidence of their psychometric properties compared with measures of depression, quality of life, and involvement in decision making was also found.
These findings suggest that persons with cognitive impairment are able to express values and preferences about care they currently receive or will need in the future. Further application and testing of the Values and Preferences Scale should prove useful to practitioners who assist those with cognitive impairment and their caregivers with daily care decisions and the development of care plans.
本研究描述了一个24项量表的开发及其心理测量特性，该量表可用于研究和实践环境，以评估认知障碍患者的日常护理价值观和偏好，以及家庭照顾者对其亲属护理价值观和偏好的认知。
价值观与偏好量表是在先前用于认知功能完好样本的测量方法基础上开发的，作者还与从业者、研究人员、家庭照顾者和认知障碍患者组成的咨询委员会协商，增加了一些项目。对轻度至中度认知障碍患者及其家庭照顾者（n = 111）进行了访谈研究。
因子分析结果表明，价值观与偏好量表可分为认知障碍患者及其家庭照顾者的两个领域或子量表（即环境-社会网络和个人自主性）。发现这些领域对于患者及其照顾者都具有良好的内部一致性（克朗巴哈系数范围为0.70至0.82）。还发现了与抑郁、生活质量和参与决策测量相比的心理测量特性证据。
这些发现表明，认知障碍患者能够表达他们对当前接受或未来需要的护理的价值观和偏好。价值观与偏好量表的进一步应用和测试对协助认知障碍患者及其照顾者进行日常护理决策和制定护理计划的从业者应是有用的。
