Lees Carolyn, Mayland Catriona, West Angela, Germaine Alison
Quality Standards and Research Manager, Liverpool Community Health NHS Trust, 2nd Floor, Liverpool Innovation Park, Digital Way, Liverpool, L7 9NJ, England.
Consultant in Palliative Medicine, Aintree University Hospitals NHS Trust, and Senior Researcher, Marie Curie Palliative Care Institute, University of Liverpool.
Int J Palliat Nurs. 2014 Feb;20(2):63-7. doi: 10.12968/ijpn.2014.20.2.63.
Little is known about the quality of the end-of-life care patients receive at home. This paper reports findings from a study that explored bereaved relatives' and carers' experiences of end-of-life care at home using the Care of the Dying Evaluation (CODE) questionnaire. Narrative data from questionnaires completed by 72 carers of patients who had died at home in the North West of England underwent qualitative analysis. In general good quality care was provided, but there were times when adequate support was not evident in relation to pain control and what to expect when death was imminent. The study provides useful information for those who provide end-of-life care at home.
对于患者在家中接受的临终关怀质量，人们知之甚少。本文报告了一项研究的结果，该研究使用临终关怀评估（CODE）问卷，探讨了丧亲亲属和护理人员对家中临终关怀的体验。对英格兰西北部72名在家中去世患者的护理人员填写的问卷中的叙述性数据进行了定性分析。总体而言，提供了高质量的护理，但在疼痛控制以及死亡临近时的预期方面，有时缺乏足够的支持。该研究为那些在家中提供临终关怀的人提供了有用的信息。
