Parry O, Peel E, Douglas M, Lawton J
Social Inclusion Research Unit, North East Wales Institute of Higher Education, Wrexham, LL11 2AW, UK.
Health Educ Res. 2006 Feb;21(1):97-107. doi: 10.1093/her/cyh044. Epub 2005 Jul 4.
Patients experience considerable difficulties in making and sustaining health-related lifestyle changes. Many Type 2 diabetes patients struggle to follow disease risk-management advice even when they receive extensive information and support. Drawing on a qualitative study of patients with Type 2 diabetes, the paper uses discourse analysis to examine their accounts about disease causation and disease management, and the implications for how they respond to their condition and health services advice. As it is a multifactorial disease, biomedical discourse around Type 2 diabetes is complex. Patients are encouraged to grasp the complicated message that both cause and medical outcomes related to their condition are partly, but not wholly, within their control. Discursive constructions identified from respondent accounts indicate how these two messages are deployed variously by respondents when accounting for disease causation and management. While these constructions (identified in respondent accounts as 'Up to me' and 'Down to them') are a valuable resource for patients, equally they may be deployed in a selective and detrimental way. We conclude that clear messages from health professionals about effective disease management may help patients to position themselves more effectively in relation to their condition. More importantly, they might serve to hinder the availability of inappropriate and potentially harmful patient positions where patients either relinquish responsibility for disease management or reject all input from health professionals.
患者在做出并维持与健康相关的生活方式改变方面面临巨大困难。许多2型糖尿病患者即使获得了广泛的信息和支持,仍难以遵循疾病风险管理建议。基于一项对2型糖尿病患者的定性研究,本文运用话语分析来审视他们对疾病成因和疾病管理的叙述,以及这些叙述对他们应对自身病情和健康服务建议的影响。由于2型糖尿病是一种多因素疾病,围绕它的生物医学话语很复杂。患者被鼓励去理解这样一个复杂的信息:与他们病情相关的病因和医疗结果部分但并非全部在他们的掌控之中。从受访者叙述中识别出的话语结构表明,在解释疾病成因和管理时,受访者如何以不同方式运用这两条信息。虽然这些结构(在受访者叙述中被识别为“取决于我”和“取决于他们”)对患者来说是一种宝贵资源,但同样也可能被以一种有选择性且有害的方式运用。我们得出结论,健康专业人员传达的关于有效疾病管理的明确信息,可能有助于患者更有效地应对自身病情。更重要的是,这些信息可能有助于避免出现不恰当且可能有害的患者立场,即患者要么放弃疾病管理责任,要么拒绝健康专业人员的所有建议。