Ramer-Chrastek Joan, Thygeson Megan V
Hospice and Palliative Care Services, Children's Hospitals and Clinics of Minnesota, 2525 Chicago Avenue South, Minneapolis, MN 55404, USA.
Int J Palliat Nurs. 2005 Jun;11(6):274-6. doi: 10.12968/ijpn.2005.11.6.18294.
Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal fetal anomaly. The model is based on the hospice philosophy of living life fully and enjoying each moment. This article describes a perinatal hospice programme that is currently in place at a hospice home care programme of a children's hospital in the USA. It includes a case example of one family's experience of this programme.
围产期临终关怀是一种新发展起来的临终关怀模式，在产前阶段为家庭提供服务，为那些在诊断出致命胎儿异常后仍艰难选择继续妊娠的家庭提供支持、指导和慰藉。该模式基于充分生活、享受每一刻的临终关怀理念。本文介绍了美国一家儿童医院临终关怀家庭护理项目中目前实施的围产期临终关怀计划。其中包括一个家庭参与该计划的案例。
