Bennett Joann, Dutcher Janet, Snyders Michele
Avera McKennan Hospital & University Health Center, Sioux Falls, South Dakota 57117, USA.
J Perinat Neonatal Nurs. 2011 Jan-Mar;25(1):72-6. doi: 10.1097/JPN.0b013e318208cb8e.
Anticipatory grief is experienced by families who are informed that their unborn child may not survive in utero or during or after delivery. The child who survives delivery, but is critically ill, brings a combination of emotions to the family: joy in welcoming a new life and fear for the future. The healthcare team members caring for the patient and family often witness this grief and are impacted. In the perinatal setting, the care continuum for these patients begins at diagnosis, typically in the prenatal setting, and continued support extends beyond the presumed life expectancy of the child. This case study is provided to demonstrate the utilization of a palliative care interdisciplinary approach to meeting the complex bereavement needs of a family who was expecting a child with a life-impacting congenital condition.
当家庭被告知他们未出生的孩子可能无法在子宫内、分娩期间或分娩后存活时，他们会经历预期性悲伤。出生后存活但病情危急的孩子给家庭带来了复杂的情绪：迎接新生命的喜悦和对未来的恐惧。照顾患者及其家庭的医疗团队成员经常目睹这种悲伤并受到影响。在围产期环境中，这些患者的护理连续体从诊断开始，通常是在产前阶段，并且持续的支持会延伸到超出孩子的预期寿命。提供这个案例研究是为了展示如何利用姑息治疗的跨学科方法来满足一个预期孩子患有影响生命的先天性疾病的家庭复杂的丧亲需求。
