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与自我达成和谐:患慢性病的生活

Achieving harmony with oneself: life with a chronic illness.

作者信息

Delmar Charlotte, Bøje Trine, Dylmer Dorrit, Forup Lisbeth, Jakobsen Christina, Møller Majbritt, Sønder Hanne, Pedersen Birthe D

机构信息

Aalborg Hospital, Arhus University Hospital, Aalborg, Denmark.

出版信息

Scand J Caring Sci. 2005 Sep;19(3):204-12. doi: 10.1111/j.1471-6712.2005.00334.x.

Abstract

This paper presents partial findings of a larger research project focusing on what it means to live with a chronic illness. Getting in harmony with oneself is a movement towards, and a form of, acceptance of the chronic suffering and disease. Some patients achieve this level of acceptance, while for others the obstacles of everyday life make this movement towards acceptance difficult. Achieving harmony with oneself is conditioned by the existence of hope and spirit of life/life courage and by the pressure of doubts on this hope. Doubts can shake this hope so that instead of moving towards acceptance, the patient drifts towards hopelessness and despair. The research design is qualitative and uses a phenomenological-hermeneutic approach. A total of 18 patients were interviewed, divided into three groups of six patients diagnosed with 'type I' diabetes, colitis ulcerosa and patients with coronary occlusion in the rehabilitation phase. The goal of the research was to derive patterns/themes common to the three diagnosed groups regarding the patients' view of health and disease in connection with chronic illness and to elucidate the significance of this view for how the patients coped with everyday life. The research method is inspired by Paul Ricoeur.

摘要

本文呈现了一个更大规模研究项目的部分成果,该项目聚焦于慢性病患者的生活状态。与自我达成和谐是迈向并成为接受慢性痛苦与疾病的一种行动及形式。一些患者达到了这种接受程度,而对另一些患者来说,日常生活中的障碍使得迈向接受的这一行动变得困难。与自我达成和谐取决于希望和生活精神/生活勇气的存在,以及对这种希望的怀疑压力。怀疑会动摇这种希望,以至于患者不是迈向接受,而是陷入绝望和无助。该研究设计为质性研究,采用现象学-诠释学方法。总共采访了18名患者,分为三组,每组6名,分别被诊断为“I型”糖尿病、溃疡性结肠炎以及处于康复阶段的冠状动脉闭塞患者。该研究的目标是得出这三个诊断组在慢性病方面关于患者对健康和疾病看法的共同模式/主题,并阐明这种看法对于患者应对日常生活的意义。该研究方法受到保罗·利科的启发。

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