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骨髓移植幸存者生活质量的意义。第1部分。骨髓移植对生活质量的影响。

The meaning of quality of life for bone marrow transplant survivors. Part 1. The impact of bone marrow transplant on quality of life.

作者信息

Ferrell B, Grant M, Schmidt G M, Rhiner M, Whitehead C, Fonbuena P, Forman S J

机构信息

Department of Nursing Research and Education, City of Hope National Medical Center, Duarte, California 91010.

出版信息

Cancer Nurs. 1992 Jun;15(3):153-60.

PMID:1611601
Abstract

Quality of life (QOL) is an important concept in cancer nursing and has particular significance for bone marrow transplant (BMT). BMT survivors are faced with the demands of acute transplant symptoms as well as chronic illness demands posttransplant. The purpose of this study was to explore the concept of QOL for BMT survivors and to gain understanding of nursing interventions that may improve QOL in this population. The conceptual framework for this study was derived from the model of QOL developed by Ferrell, Grant, and Padilla (1989) that depicts the QOL domains of physical well-being, psychological well-being, social concerns, and spiritual well-being. This qualitative study consisted of a one-time interview of 119 BMT survivors using six open-ended questions. The items were based on previous research of the authors and content validity was established by a panel of BMT experts. Content analysis was performed on verbatim written responses to six questions regarding BMT and QOL. Part one of this two-part report provides analysis based on the questions regarding the meaning of QOL to BMT survivors and the impact of BMT on QOL.

摘要

生活质量(QOL)是癌症护理中的一个重要概念,对骨髓移植(BMT)具有特殊意义。骨髓移植幸存者面临着急性移植症状的需求以及移植后慢性病的需求。本研究的目的是探讨骨髓移植幸存者的生活质量概念,并了解可能改善该人群生活质量的护理干预措施。本研究的概念框架源自费雷尔、格兰特和帕迪拉(1989年)开发的生活质量模型,该模型描绘了身体健康、心理健康、社会关注和精神健康等生活质量领域。这项定性研究包括使用六个开放式问题对119名骨髓移植幸存者进行一次性访谈。这些问题基于作者之前的研究,并由一组骨髓移植专家确定了内容效度。对关于骨髓移植和生活质量的六个问题的逐字书面回答进行了内容分析。这份两部分报告的第一部分基于关于生活质量对骨髓移植幸存者的意义以及骨髓移植对生活质量的影响的问题进行分析。

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