“透析患者的生活是怎样的？”：临床维持生存中的时间与衰老
"Is there life on dialysis?": time and aging in a clinically sustained existence.
作者信息
Russ Ann J, Shim Janet K, Kaufman Sharon R
机构信息
Institute for Health and Aging, Box 0646, University of California, San Francisco, CA, 94143-0646, USA.
出版信息
Med Anthropol. 2005 Oct-Dec;24(4):297-324. doi: 10.1080/01459740500330639.
Abstract
Increasingly, in the United States, lives are being extended at ever-older ages through the implementation of routine medical procedures such as renal dialysis. This paper discusses the lives and experiences of a number of individuals 70 years of age and older at two dialysis units in California. It considers what kind of life it is that is being sustained and prolonged in these units, the meanings of the time gained through (and lost to) dialysis for older people, and the relationship of "normal" life outside the units to an exceptional state on the inside that some patients see as not-quite-life. Highlighting the unique dimensions of gerontological time on chronic life support, the article offers a phenomenology of the end of life as that end is drawn out, deferred by technological means, and effaced by the ethos and experiential course of dialysis treatment.
摘要
在美国，通过实施诸如肾透析等常规医疗程序，越来越多老年人的生命得以延长。本文探讨了加利福尼亚州两个透析中心一些70岁及以上老人的生活与经历。它思考了在这些透析中心所维持和延长的是怎样一种生活，透析为老年人带来（以及失去）的时间的意义，以及透析中心外的“正常”生活与一些患者视为非完全生活的中心内特殊状态之间的关系。文章突出了老年学时间在慢性生命维持方面的独特维度，呈现了一种生命尽头的现象学，这种尽头被技术手段拉长、推迟，并因透析治疗的理念和体验过程而变得模糊。
相似文献
1
"Is there life on dialysis?": time and aging in a clinically sustained existence.“透析患者的生活是怎样的？”：临床维持生存中的时间与衰老
Med Anthropol. 2005 Oct-Dec;24(4):297-324. doi: 10.1080/01459740500330639.
2
Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: a cross-sectional study in the UK and Australia.75 岁以上终末期肾病患者的健康相关生活质量和幸福感：英国和澳大利亚的一项横断面研究。
BMJ Open. 2019 May 19;9(5):e027776. doi: 10.1136/bmjopen-2018-027776.
3
Expectations and psychological needs of elderly dialysis patients.老年透析患者的期望和心理需求。
Int J Aging Hum Dev. 1990;31(4):239-49. doi: 10.2190/6JAF-GMP3-K4TY-D7RW.
4
Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care.透析或综合保守治疗的终末期肾病患者照顾者的生活质量。
BMC Nephrol. 2020 May 4;21(1):160. doi: 10.1186/s12882-020-01830-9.
5
'It's basically 'have that or die'': a qualitative study of older patients' choices between dialysis and conservative kidney management.“基本上就是‘要么接受透析，要么等死’”：一项关于老年患者在透析与保守肾脏管理之间选择的定性研究。
BMJ Open. 2025 Mar 7;15(3):e095185. doi: 10.1136/bmjopen-2024-095185.
6
Being dialysis-dependent: a qualitative perspective.透析依赖：一种质性视角。
Collegian. 2003 Apr;10(2):29-33. doi: 10.1016/s1322-7696(08)60052-9.
7
African American Hemodialysis Patients' Perceptions of Faith and Nursing.
J Christ Nurs. 2017 Oct/Dec;34(4):E56-E59. doi: 10.1097/CNJ.0000000000000442.
8
To dialyse or delay: a qualitative study of older New Zealanders' perceptions and experiences of decision-making, with stage 5 chronic kidney disease.透析还是拖延：一项关于患有5期慢性肾病的新西兰老年人决策观念与经历的定性研究
BMJ Open. 2017 Mar 29;7(3):e014781. doi: 10.1136/bmjopen-2016-014781.
9
Preparing for hemodialysis: patient stressors and responses.血液透析准备：患者的压力源与应对方式
Nephrol Nurs J. 2005 May-Jun;32(3):295-302; quiz 303.
10
Biopsychosocial experiences and coping strategies of elderly ESRD patients: a qualitative study to inform the development of more holistic and person-centred health services in Singapore.老年终末期肾病患者的生物心理社会体验和应对策略：一项定性研究，旨在为新加坡提供更全面和以患者为中心的卫生服务提供信息。
BMC Public Health. 2019 Aug 14;19(1):1107. doi: 10.1186/s12889-019-7433-6.
引用本文的文献
1
'It's basically 'have that or die'': a qualitative study of older patients' choices between dialysis and conservative kidney management.“基本上就是‘要么接受透析，要么等死’”：一项关于老年患者在透析与保守肾脏管理之间选择的定性研究。
BMJ Open. 2025 Mar 7;15(3):e095185. doi: 10.1136/bmjopen-2024-095185.
2
Establishing Research Priorities in Geriatric Nephrology: A Delphi Study of Clinicians and Researchers.确定老年肾脏病学的研究重点：一项针对临床医生和研究人员的德尔菲研究
Am J Kidney Dis. 2025 Mar;85(3):293-302. doi: 10.1053/j.ajkd.2024.09.012. Epub 2024 Nov 26.
3
When to stop: Transfusions, difficult conversations and creativity.何时停止：输血、艰难对话与创造力。
Hemasphere. 2024 May 28;8(5):e79. doi: 10.1002/hem3.79. eCollection 2024 May.
4
Uncovering Patient and Caregiver Goals for Goal-Concordant Care in Kidney Therapy Decisions.揭示患者和照护者在肾脏治疗决策中对目标一致的护理的目标。
Am J Hosp Palliat Care. 2024 Nov;41(11):1350-1357. doi: 10.1177/10499091241227242. Epub 2024 Jan 9.
5
Perceptions of healthcare providers on benefits, risks and barriers regarding intradialytic exercise among haemodialysis patients.血液透析患者透析中运动的益处、风险和障碍感知：医护人员的观点。
Int J Qual Stud Health Well-being. 2024 Dec;19(1):2287597. doi: 10.1080/17482631.2023.2287597. Epub 2023 Dec 6.
6
Structural and Psychosocial Challenges Among Underserved Patients Receiving Hemodialysis During and Beyond the COVID-19 Pandemic: A Qualitative Study.COVID-19大流行期间及之后接受血液透析的弱势群体患者面临的结构和社会心理挑战：一项定性研究
Kidney Med. 2023 Aug 25;5(11):100717. doi: 10.1016/j.xkme.2023.100717. eCollection 2023 Nov.
7
Revisiting nephrology care: a medical humanities perspective.重新审视肾脏病护理：医学人文学视角
J Nephrol. 2023 Jul;36(6):1497-1499. doi: 10.1007/s40620-023-01698-6. Epub 2023 Jun 21.
8
[Between trivialization and pathologization: Healthcare in old age and the temporal structure of a good life].[在轻视与病态化之间：老年保健与美好生活的时间结构]
Ethik Med. 2023;35(1):77-91. doi: 10.1007/s00481-022-00742-6. Epub 2023 Jan 4.
9
Palliative Care in Patients with End-Stage Renal Disease: A Meta Synthesis.终末期肾病患者的姑息治疗：荟萃分析。
Int J Environ Res Public Health. 2021 Oct 11;18(20):10651. doi: 10.3390/ijerph182010651.
10
Discussions during shared decision-making in older adults with advanced renal disease: a scoping review.老年晚期肾病患者共同决策过程中的讨论：一项范围综述
BMJ Open. 2019 Nov 24;9(11):e031427. doi: 10.1136/bmjopen-2019-031427.
本文引用的文献
1
Pulling the plug.
Palliat Support Care. 2003 Sep;1(3):279-83. doi: 10.1017/s1478951503030190.
2
Family perceptions of prognosis, silence, and the "suddenness" of death.家庭成员对预后、沉默以及死亡“突然性”的看法。
Cult Med Psychiatry. 2005 Mar;29(1):103-23. doi: 10.1007/s11013-005-4625-6.
3
Measuring quality of dying in end-stage renal disease.衡量终末期肾病患者的死亡质量。
Semin Dial. 2004 Sep-Oct;17(5):376-9. doi: 10.1111/j.0894-0959.2004.17348.x.
4
The Renal Palliative Care Initiative.肾脏姑息治疗倡议
J Palliat Med. 2003 Apr;6(2):321-6. doi: 10.1089/109662103764978650.
5
Practical considerations in dialysis withdrawal: "to have that option is a blessing".透析撤机的实际考量：“拥有那个选择是一种福气”。
JAMA. 2003;289(16):2113-9. doi: 10.1001/jama.289.16.2113.
6
Redefining life while forestalling death: living with an implantable cardioverter defibrillator after a sudden cardiac death experience.在预防死亡的同时重新定义生活：经历心脏性猝死事件后带着植入式心律转复除颤器生活
Qual Health Res. 2002 Mar;12(3):360-72. doi: 10.1177/104973202129119946.
7
Quality end-of-life care in dialysis units.透析单位的优质临终关怀。
Semin Dial. 2002 Jan-Feb;15(1):41-4. doi: 10.1046/j.1525-139x.2002.00015.x.
8
Denying the dying. Advance directives and dialysis discontinuation.拒绝面对死亡。预先指示与停止透析
Psychosomatics. 1997 Jan-Feb;38(1):27-34. doi: 10.1016/S0033-3182(97)71500-7.
9
"How's the baby doing?" Struggling with narratives of progress in a neonatal intensive care unit.“宝宝情况如何？” 在新生儿重症监护病房里讲述病情进展时遇到了困难。
Med Anthropol Q. 1996 Dec;10(4):624-56. doi: 10.1525/maq.1996.10.4.02a00130.
10
Why is it difficult for staff to discuss advance directives with chronic dialysis patients?为什么工作人员难以与慢性透析患者讨论预先指示？
J Am Soc Nephrol. 1996 Oct;7(10):2160-8. doi: 10.1681/ASN.V7102160.
Zotero 插件