“透析患者的生活是怎样的？”：临床维持生存中的时间与衰老
"Is there life on dialysis?": time and aging in a clinically sustained existence.
作者信息
Russ Ann J, Shim Janet K, Kaufman Sharon R
机构信息
Institute for Health and Aging, Box 0646, University of California, San Francisco, CA, 94143-0646, USA.
出版信息
Med Anthropol. 2005 Oct-Dec;24(4):297-324. doi: 10.1080/01459740500330639.
Abstract
Increasingly, in the United States, lives are being extended at ever-older ages through the implementation of routine medical procedures such as renal dialysis. This paper discusses the lives and experiences of a number of individuals 70 years of age and older at two dialysis units in California. It considers what kind of life it is that is being sustained and prolonged in these units, the meanings of the time gained through (and lost to) dialysis for older people, and the relationship of "normal" life outside the units to an exceptional state on the inside that some patients see as not-quite-life. Highlighting the unique dimensions of gerontological time on chronic life support, the article offers a phenomenology of the end of life as that end is drawn out, deferred by technological means, and effaced by the ethos and experiential course of dialysis treatment.
摘要
在美国，通过实施诸如肾透析等常规医疗程序，越来越多老年人的生命得以延长。本文探讨了加利福尼亚州两个透析中心一些70岁及以上老人的生活与经历。它思考了在这些透析中心所维持和延长的是怎样一种生活，透析为老年人带来（以及失去）的时间的意义，以及透析中心外的“正常”生活与一些患者视为非完全生活的中心内特殊状态之间的关系。文章突出了老年学时间在慢性生命维持方面的独特维度，呈现了一种生命尽头的现象学，这种尽头被技术手段拉长、推迟，并因透析治疗的理念和体验过程而变得模糊。
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本文引用的文献
1
Pulling the plug.拔掉插头。
Palliat Support Care. 2003 Sep;1(3):279-83. doi: 10.1017/s1478951503030190.
2
Family perceptions of prognosis, silence, and the "suddenness" of death.家庭成员对预后、沉默以及死亡“突然性”的看法。
Cult Med Psychiatry. 2005 Mar;29(1):103-23. doi: 10.1007/s11013-005-4625-6.
3
Measuring quality of dying in end-stage renal disease.衡量终末期肾病患者的死亡质量。
Semin Dial. 2004 Sep-Oct;17(5):376-9. doi: 10.1111/j.0894-0959.2004.17348.x.
4
The Renal Palliative Care Initiative.肾脏姑息治疗倡议
J Palliat Med. 2003 Apr;6(2):321-6. doi: 10.1089/109662103764978650.
5
Practical considerations in dialysis withdrawal: "to have that option is a blessing".透析撤机的实际考量：“拥有那个选择是一种福气”。
JAMA. 2003;289(16):2113-9. doi: 10.1001/jama.289.16.2113.
6
Redefining life while forestalling death: living with an implantable cardioverter defibrillator after a sudden cardiac death experience.在预防死亡的同时重新定义生活：经历心脏性猝死事件后带着植入式心律转复除颤器生活
Qual Health Res. 2002 Mar;12(3):360-72. doi: 10.1177/104973202129119946.
7
Quality end-of-life care in dialysis units.透析单位的优质临终关怀。
Semin Dial. 2002 Jan-Feb;15(1):41-4. doi: 10.1046/j.1525-139x.2002.00015.x.
8
Denying the dying. Advance directives and dialysis discontinuation.拒绝面对死亡。预先指示与停止透析
Psychosomatics. 1997 Jan-Feb;38(1):27-34. doi: 10.1016/S0033-3182(97)71500-7.
9
"How's the baby doing?" Struggling with narratives of progress in a neonatal intensive care unit.“宝宝情况如何？” 在新生儿重症监护病房里讲述病情进展时遇到了困难。
Med Anthropol Q. 1996 Dec;10(4):624-56. doi: 10.1525/maq.1996.10.4.02a00130.
10
Why is it difficult for staff to discuss advance directives with chronic dialysis patients?为什么工作人员难以与慢性透析患者讨论预先指示？
J Am Soc Nephrol. 1996 Oct;7(10):2160-8. doi: 10.1681/ASN.V7102160.
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