Carone M, Donner C F
Division of Respiratory Disease, Scientific Institute of Veruno, Salvatore Maugeri Foundation, Italy.
Chron Respir Dis. 2005;2(1):29-33. doi: 10.1191/1479972305cd060rs.
Therapy and rehabilitation of common causes of respiratory-induced disability are directed towards a reduction of exacerbations, minimization of symptom severity, and improvement, or at least maintenance, of the patient's health. Unfortunately, these diseases are frequently complicated by chronic respiratory failure (CRF), which determines a rapid increase in the impact of the disease on the patient's daily life and well-being. Under such circumstances, the effect of therapy on a patient's health status and well-being represents the most important subjective outcome of treatment. An adequate assessment of patient's quality of life can only be obtained from the patients themselves; that is, it requires direct measurement through the use of valid and reliable questionnaires, whether generic or disease-specific. The St George's Respiratory Questionnaire and the Maugeri Foundation Respiratory Failure Questionnaire have been shown to be applicable and reliable in patients on long-term ventilation.
呼吸诱导性残疾常见病因的治疗与康复旨在减少病情加重、将症状严重程度，减轻症状，并改善或至少维持患者健康。不幸的是，这些疾病常并发慢性呼吸衰竭（CRF），这导致疾病对患者日常生活和幸福感的影响迅速增加。在这种情况下，治疗对患者健康状况和幸福感的影响是治疗最重要的主观结果。对患者生活质量的充分评估只能从患者自身获得；也就是说，需要通过使用有效且可靠的问卷进行直接测量，无论是通用问卷还是疾病特异性问卷。圣乔治呼吸问卷和毛格里基金会呼吸衰竭问卷已被证明适用于长期通气患者且可靠。
