Williams Clare
School of Nursing and Midwifery, King's College London, UK.
Sociol Health Illn. 2006 Jan;28(1):1-20. doi: 10.1111/j.1467-9566.2006.00480.x.
It is argued that innovative health technologies (IHTs) may be changing the roles of both patients and health practitioners, and raising new issues, including ethical, legal and social dilemmas. This paper focuses on the innovative area of fetal medicine. All fetal treatment necessitates accessing the fetus through the pregnant woman's body, and non-surgical treatments have long been a part of pregnancy care. However, recent developments in this area, including the increasing routinisation of sophisticated antenatal ultrasound screening and the introduction of treatments including fetal surgery, may mark a shift in this specialty. The paper explores such shifts from the perspectives of medical and midwifery practitioners working in two Fetal Medicine Units. It examines the apparent effects of the orientation of fetal medicine on prevalent conceptualisations of the maternal-fetal relationship, and some of the consequences of this. It is argued that new forms of uncertainty, including complex risk and diagnostic information, and uncertain prognostic predictions set within the rhetoric of non-directive counselling and women's choice, are leading to unprecedented ethical dilemmas within this area. More widespread debate about such potential dilemmas needs to take place before, rather than following their introduction.
有人认为,创新健康技术(IHTs)可能正在改变患者和医疗从业者的角色,并引发新的问题,包括伦理、法律和社会困境。本文聚焦于胎儿医学这一创新领域。所有胎儿治疗都需要通过孕妇身体接触胎儿,并且非手术治疗长期以来一直是孕期护理的一部分。然而,该领域的最新发展,包括复杂的产前超声筛查日益常规化以及胎儿手术等治疗方法的引入,可能标志着这一专业领域的转变。本文从两个胎儿医学科室的医学和助产从业者的角度探讨了这种转变。它考察了胎儿医学的定位对母婴关系普遍概念化的明显影响以及由此产生的一些后果。有人认为,新形式的不确定性,包括复杂的风险和诊断信息,以及在非指导性咨询和女性选择的言辞背景下不确定的预后预测,正导致该领域出现前所未有的伦理困境。对于此类潜在困境,应在其引入之前而非之后进行更广泛的讨论。