Ehrich Kathryn, Williams Clare, Farsides Bobbie
Centre for Biomedicine and Society, King's College London, London.
Sociol Health Illn. 2008 Jul;30(5):772-87. doi: 10.1111/j.1467-9566.2008.01083.x. Epub 2008 Apr 28.
We report on one aspect of a study that explored the views and experiences of practitioners and scientists on social, ethical and clinical dilemmas encountered when working in the field of preimplantation genetic diagnosis (PGD) for serious genetic disorders. The study produced an ethnography based on observation, interviews and ethics discussion groups with staff from two PGD/IVF Units in the UK. We focus here on staff perceptions of work with embryos that entails disposing of 'affected' or 'spare' embryos or using them for research. A variety of views were expressed on the 'embryo question' in contrast to polarised media debates. We argue that the prevailing policy acceptance of destroying affected embryos, and allowing research on embryos up to 14 days leaves some staff with rarely reported, ambivalent feelings. Staff views are under-researched in this area and we focus on how they may reconcile their personal moral views with the ethical framework in their field. Staff construct embryos in a variety of ways as 'moral work objects'. This allows them to shift attention between micro-level and overarching institutional work goals, building on Casper's concept of 'work objects' and focusing on negotiation of the social order in a morally contested field.
我们报告了一项研究的一个方面,该研究探讨了从业者和科学家对于在严重遗传疾病的植入前基因诊断(PGD)领域工作时遇到的社会、伦理和临床困境的看法与经历。该研究基于对英国两个PGD/IVF单位工作人员的观察、访谈及伦理讨论组,形成了一份人种志。我们在此聚焦于工作人员对于涉及处置“受影响的”或“多余的”胚胎,或利用它们进行研究的胚胎相关工作的看法。与两极分化的媒体辩论形成对比的是,对于“胚胎问题”出现了各种各样的观点。我们认为,当前对于销毁受影响胚胎以及允许对14天以内胚胎进行研究的政策接受度,让一些工作人员产生了鲜有报道的矛盾情绪。在这一领域,工作人员的观点研究不足,我们关注他们如何使个人道德观点与所在领域的伦理框架相协调。工作人员以多种方式将胚胎构建为“道德工作对象”。这使他们能够在微观层面和总体机构工作目标之间转移注意力,借鉴卡斯珀的“工作对象”概念,并聚焦于在一个存在道德争议的领域中社会秩序的协商。